Alzheimers Association

The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. About us.

Apr 072014
 
Advocacy: Why It Matters

I’m in Washington, D.C. today as an Alzheimer’s advocate. Why? Three years ago my life took a very unexpected change in course. In 2011 at the age of 56, I was diagnosed with younger-onset dementia, probable frontotemporal dementia (FTD). But my journey, although altered, is by no means over. I have chosen not to let this disease isolate or silence me. After my diagnosis I found it difficult to locate services and education for people [...]

Mar 112014
 
"You Don't Look Like You Have Alzheimer's"

A few weeks ago, I developed a cough. I went to the doctor, they checked everything out and sent me home. But I wasn’t getting better. I started to worry when the cough got really bad and I was having a hard time breathing. I called my son, who told me that if it didn’t get better, I should go to the emergency room. By three in the afternoon, I was still having trouble breathing, [...]

Feb 212014
 
A Caregiver's Decision to Participate in Clinical Trials

Volunteers – both with and without Alzheimer’s disease – are needed to participate in actively enrolling clinical trials about Alzheimer’s and related dementias. Recruiting and retaining trial participants is one of the greatest obstacles to developing the next generation of  treatments and possibly future cures for Alzheimer’s and other dementias. TrialMatch® is a free matching service that connects individuals with Alzheimer’s and other dementias, caregivers, healthy volunteers and physicians with current clinical studies. With a [...]

Feb 142014
 
Creating Awareness during Black History Month

During Black History Month, the Alzheimer’s Association spoke with Dr. Monica Parker, an African-American family physician, caregiver and assistant professor of medicine about her passion for providing communities with local resources. The theme throughout all of her research and work in the field is simple: Education. Board certified since 1990, Dr. Parker has practiced primary care and geriatric medicine in rural Georgia and urban Atlanta. Since 1995, she has been practicing with Emory Healthcare, often [...]

Jan 222014
 
Making Plans for the Future After an Alzheimer's Diagnosis

Two years ago, at the age of 69, I was diagnosed with Alzheimer’s disease. Shortly after receiving the diagnosis, I began to think a lot about the future. The more I thought about the future, the more I realized that I needed to implement plans for the inevitable progression of the disease while I had the ability to do so. This also seemed much more proactive than just sitting around worrying about having Alzheimer’s. Prior [...]

Dec 232013
 
Missing Jim During the Most Wonderful Time of the Year

I miss Jim so much during Christmas time. I miss our discussions about what to get the kids and our families. I miss sitting next to our tree, looking at the lights and sharing quiet time together. I miss feeling excited, wondering what thoughtful present he placed under the tree. I miss singing songs, watching movies and so much more. Jim still throws out a hum (actually, lots of hums) during Christmas songs, but it [...]

Dec 102013
 
Coasting for the Cause to #ENDALZ

I love participating in the annual Walks to End Alzheimer’s, but let’s face it – walking can be boring. For my first Walk to End Alzheimer’s in 2012, I raised more than $1,500. One year later, my donations netted nearly $9,000 for my local Alzheimer’s Association through a fun and creative tribute to my brother, Kevin. Prior to the summer of 2013, my summer hobby became the campaign “Bobbleheads United to End Alzheimer’s.” I collected my [...]

Dec 062013
 
When My World Became All Things Alzheimer's

“In all likelihood, you have mild cognitive impairment that will eventually lead to younger-onset Alzheimer’s disease, especially with your family’s history.” With that brief pronouncement, my world, my husband’s world and our children’s world changed forever. My husband Jim was 48 when we heard those words. I was 40. Our daughter was 9 and our son was 6. I wasn’t exactly sure what it all meant. The more reading and research I did, the more depressed I became. [...]

Nov 252013
 
Five Tips to Help Caregivers Get Their Zzzs

When it comes to caring for a parent, spouse or other loved one, sleep is not for beauty. It is essential to maintain health and the energy needed to be a caregiver. Uninterrupted, restorative sleep (7 to 9 hours) is recommended by most experts. But for many of the nation’s 65 million family caregivers, sleep is an elusive luxury.  In fact, a National Alliance for Caregiving (NAC) study on caregiver health risks found 87 percent of those [...]

Nov 142013
 
A Tribute to My Care Partner

Next month, Mary Margaret and I will have been together 50 years. She is a very positive gal, extremely caring and inclusive with her friends. I am not always a social animal. Mary, however, is very outgoing and makes new friends easily. These days, we are attached at the hip… but it wasn’t always this way. In 2009, I was diagnosed with Alzheimer’s. After I received the diagnosis our lives changed. At the time, Mary [...]

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