Our Blog Team


Alzheimer’s Association
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. About us.

Neelum T Aggarwal, M.D.
An Associate Professor in the Department of Neurological Sciences at Rush University Medical Center in Chicago and a steering committee member at Alzheimer’s Disease Cooperative Study Group, Dr. Aggarwal, is a cognitive neurologist with particular interest in all types of dementia (Alzheimer’s disease, fronto temporal dementia, vascular dementia and Lewy body dementia). In addition to her active clinical practice, she continues to conduct original research in a variety of large scale community-based studies. She is the co-investigator on multiple grants funded by the National Institute on Aging (NIA). In addition, she is a speaker to many community and business organizations that seek to gain a better understanding of the changes—cognitively and physically—in the aging process, and is an advisor for community-based and minority health initiatives.

Paul S. Aisen, M.D.

Paul Aisen, M.D., is a professor of neurology and the founding director of USC Alzheimer’s Therapeutic Research Institute (ATRI).  Dr. Aisen has been a leading figure in Alzheimer’s disease research for more than two decades, having developed novel methodologies as well as designed and directed many large therapeutic trials. With his expertise and leadership, Keck School of Medicine of USC will create a leading hub of basic, translational and clinical research in neuroscience and neurological diseases. After serving as chief medical resident at Mount Sinai, he began a solo practice in internal medicine and rheumatology in New York. Aisen joined the faculty of Mount Sinai in 1994 and was recruited to Georgetown University in 1999 as a professor of neurology and medicine. That year, he founded the Memory Disorders Program, a clinical and research program for Alzheimer’s disease and related disorders. He continued basic research studies on therapeutic targets and biomarkers and designed and directed multi-center therapeutic trials. He became vice chair of the Department of Neurology at Georgetown in 2004. From 2007 through 2015, he was professor in the Department of Neurosciences at the University of California, San Diego and director of the Alzheimer’s Disease Cooperative Study. Aisen has collaborated extensively with the biotech and pharmaceutical industries for many years. He has led numerous multicenter trials, and has authored more than 350 scientific papers.

Robert Egge
Robert Egge is the Alzheimer’s Association’s Chief Public Policy Officer, and Executive Director of the Alzheimer’s Impact Movement. Mr. Egge leads the Association’s efforts to elevate Alzheimer’s as a critical federal and state government priority and to implement policies to better serve those affected by Alzheimer’s disease and other dementia. Chief among these priorities are increasing federal funding for Alzheimer’s research and implementing more effective care and support services at the federal and state levels.

Harry Johns
Harry Johns has served as the president and chief executive officer of the Alzheimer’s Association since 2005. Since his arrival, the Alzheimer’s Association has built new momentum for its vision of a world without Alzheimer’s, including the first nationwide campaign to increase understanding and awareness about Alzheimer’s disease, an emphasis on accelerated treatment progress through the promotion of participation in clinical studies, a campaign to enhance early detection of the disease, tools designed to support both individuals with the disease and their caregivers, and targeted research funding to advance diagnosis and treatment. Harry was appointed by the Secretary of Health and Human Services in 2011 to serve as a member of the Advisory Council on Alzheimer’s Research, Care, and Services. He also serves as CEO of the Alzheimer’s Impact Movement and on the Executive Committee of Research!America. Prior to joining the Alzheimer’s Association, he was one of the four members of the executive team of the American Cancer Society.

Michael Rafii, M.D., Ph.D.

Michael Rafii, M.D., Ph.D., is Associate Professor of Clinical Neurology at the Keck School of Medicine of the University of Southern California (USC) and Clinical Director of the Alzheimer’s Therapeutic Research Institute (ATRI). He received his MD and PhD degrees from Brown University School of Medicine and conducted neurogenetics research at Harvard Medical School. He holds two patents for protein-based therapeutics resulting from his work while a graduate student. Dr. Rafii completed his residency in Neurology at the Johns Hopkins Hospital, where he was chief resident. He then undertook a fellowship in dementia and cognitive disorders at UC San Diego. Dr. Rafii’s research focuses on the design and conduct of clinical trials for Alzheimer’s disease including Alzheimer’s disease in people with Down syndrome. He has led both phase I and phase II multi-center clinical trials. Dr. Rafii also serves on the National Task Group on Intellectual Disabilities and Dementia Practices of the American Academy of Developmental Medicine. He is ad hoc member of the NIH study section on Developmental Brain Disorders and co-editor of the textbook ‘Common Pathogenic Mechanisms between Down Syndrome and Alzheimer’s Disease: Steps toward Therapy.’ He previously served as Medical Director of the Alzheimer’s Disease Cooperative Study (ADCS), Director of the UC San Diego Memory Disorders Clinic and Director of the Neurology Residency Training program at UC San Diego.

Sherri Snelling
Sherri Snelling, CEO and founder of the Caregiving Club, is a nationally recognized expert on America’s 65 million family caregivers with special emphasis on how to help caregivers balance “self care” while caring for a loved one. She is the former chairman of the National Alliance for Caregiving and is currently writing a book about celebrities who have been caregivers. She also has served on the caregiving advisory councils for the Centers for Medicare and Medicaid Services (CMS) as well as the Centers for Disease Control (CDC).

  112 Responses to “Our Blog Team”

  1. I just wanted to add something here that I have not seen before. I just saw that Springbok Puzzles have jigsaw puzzles for Alzheimer's patients. I wonder if anyone else has heard about this?

    • Hi my name is Amber creech my mom had alzheimer’s and she hid it fast however the medical personal need to focus on the patient and family help them find resources for alzheimer’s not throw your love one in a nursing home from roseville to Stockton. That was really wrong of them to do that because she had medial and medicare. If I knew about the alzheimer’s org five years ago I would had better understanding about this disease.

  2. I am having difficulty accepting that everything that we are seeing in Dad is Alzheimer's , Dementia in the Frontal Lobe area is the problem. He was Dx 8 years ago. He can walk around, does not exercise. Sits in his chair most of the day. He has lost 80-90% of his strength and tactile ability in his fingers. He need assistance undressing to go to the restroom, to change his clothes, to wash his face, comb is hair and to shower. He does not want to take a shower or change clothes. Continenance is a big issue. He wears mens pads and now recently a pull up and a pad. He can not tie his shoes or pull up his pants. He is very OCD and is a hoarder, which makes getting the house accessible for help very difficult. I have been workin on the house for the past several years.

  3. Part 2: He can bearly sign his name, so he is not writting checks, but has to look at the check after it is written to so what is noted on the comment line and review the check. When I plan to come over to work on the house or the yard, I have to give a a detail plan of what we will be doing, the start time and how long I will be there. He is does not easily accept change that will help him and Mom that is taking full care of him. It takes him awhile to get ready to go out for appts or errands with Mom's pushing and helping. She has to give him a shower a day ahead and save him the morning of an appt.
    Any help or suggestions/comment or ideas.

  4. I just wanted to share the story about my grandfather, who had Alzheimer’s, who died four years ago today and didn't know where else I should post it.

    • There are indeed many rsoaens why the elderly can be depressed and you seem to have covered a great many rsoaens here. Another important reason that I have read about is due to medications. Older adults are far more likely to be taking a number of medications and these medications can cause depression by themselves or as a result of drug interactions. Because of this, it is important for us to be mindful of these drugs we or a loved one might be taking that might cause depression.

    • Keep sharing your story and writing JWo, it’s how we’ll cure this damn thing. My Mom has had it for 10 years…

  5. I see celebs. out telling their stories, but where is the media coverage. You all speek well for the caregiver, but what about me and the others in my world, who really speaks for us, in fact who really wants to hear from us. Since a recent study released showedd that 60% of Americans think this damn disease is cureable, I guess the word is not getting out.
    God Bless,

    • Hey Joe,
      I totally hear you, and until I was impacted with my dad being diagnosed with Alzheimer’s, I was guilty of it being “someone else’s problem” I just didn’t know anything about it really, other than it was an old age disease, how very naive I was, and like so many other horrible diseases, until it hits someone personally, there doesn’t seem to be much of an interest taken. I know different now, I’m just so sorry that it took me so long to realize that there was something this important missing in my life, and that is being a part of making something happen, realizing that there is something so much bigger than all of our little day in and day out trivialities of life, that there are lives being turned upside down, inside out with Alzheimer’s & other monstrous diseases.
      It took my dad’s diagnosis with Alzheimer’s to make me get off my fanny and get involved in something more important than my own life, and now my mission extends to not just my dad, but to everyone who is suffering from AD or every caregiver that has or is losing someone to Alzheimer’s. Until there is a cure, I will remain on this mission.

      • It’s maddening, every day there is a new research that says if you eat this or don’t eat that you won’t get alzheimer’s! They are kidding themselves, and doing a disservice to the real research that needs to be done to combat this disease.

  6. My sister has Alzhiemers, my brother had it as well! My brother died six years ago at 62 years old. My sister is 65. It is really hard, I don't know what I would do without support. I find the best thing for me is to ask for what I need from family and take each day as it comes. We are planning a big birthday party for my sister in July at her request!

    • So your brother would have been classified as early onset? Correct? How old was he when he was first diagnosed? My wife was diagnosed in Nov 2009 at the age of 56. I read a story here in our city of a assistance to one of our mayors who had passed away at age 60 and was diagnosed at the age of 55. This is when I first heard the term early onset. I've been told that the life span is far less then a normal victim of this disease. I would like to learn more about this whether it be reading material or some kind of testing that is available. Do you have any resourses that I could look in too.

  7. Yesterday I learned my husband has AD. My husband won't be told for another 5 days when he gets the results of his assessment. So many emotions, so much fear, so much uncertainity about what to do and how best to help him when he hears the news. I am glad I have these few days to get used to the idea so when he is told I can be there for him. Bless the counselor from the Alzheimer Association; she moved me from a place of frozen desperation to a place where I can take tiny steps in thinking about a new future and a different us. I have so many questions my head hurts but that pain is so small compared to the pain in my heart for my husband. I feel so inadequate and without confidence yet there is no choice I have to move forward and accept.

    • June 20, 2012 "The Longest Day" supporting Alzheimer's Research……Find a great Support Group…..It is a devastating journey with many bumps in the road…..Take One Day At A Time…..
      I cared for my husband of 56 yrs 24/7 in our home…..We had to be separated by Alzheimers for the first time in our marriage in Nov 2011 as I became ill & I could no longer care for him at home. He has adjusted to living in an Assisted Living Memory Care…He is safe & well taken care of….AND LIFE GOES ON…..NOT easy but start out with the baby steps & again…..Find a good Caregiver Support Group….We have no other choice but to go forward & cherish our past memories.
      Someday There Will Be A Cure……Amen

  8. June 20, 2012 "The Longest Day" supporting Alzheimer's Research…..
    Many thanks from Anita's Team (Mission Oaks ) to family & friends for your love & continued support…..We raised over $1,000.00……
    "Someday There Will Be A Cure"……"The love of my life" for the last 56 yrs MOE participated with all of us & enjoyed every minute of the day….Surrounded by soooo many friends……HE even was the BEST PUTTER of the day…….He has not forgotten that!
    Thank You again

    • June 20, 2012 "The Longest Day" supporting Alzheimer's Research……
      Many thanks from Anita's Team (Mission Oaks) to family & friends for your love & support… We raised over $1,000.00
      "Someday There Will Be A Cure"…..:The Love of My Life" for the past 56 yrs MOE participated with all of us & enjoyed every moment of the day…..Surrounded by soooo many friends….HE even was the BEST PUTTER of the Day!….He has not forgotten that!
      Thank You Again

  9. Please share this video and #OneThing that you never want to forget to help end Alzheimer's.

  10. My dad was diagnosed with Alzheimer’s and thankfully he has a full team of support! Along with my mom, I have 7 siblings and everyone has pulled together to help take care of him. He still has some very lucid moments so Alzheimer’s has not gotten the best of him yet. I have a new mission now and that is to be a part of finding a cure for Alzheimer’s, whatever commitment that takes on my part and it is wonderful to see this huge community & support forum!!
    Thank You!!

  11. My Dad has late stage Alzheimers and, to help me and my family cope, I have started a blog at http://ihatealzheimers.blogspot.com/. It’s brand new, but already it has helped me remember my Dad in a way that I want to remember him, before he had the disease. I hope other people will read it and find comfort as well. Let me know what you think.

  12. I'd like to share this. I have been blogging about my mom's alz for over 2 years with an emphasis on her grandchildren. For anyone that is interested in how to share the love with small children. Please read. http://www.lois-peggy.blogspot.com
    Thank you.

  13. I find nothing on UTI- urinary tract infections and this a vital subject to be aware of and observant to?

    • Our Mother, in her early 70's has Alzheimer's and was just hospitalized for a UTI !! …They put her on antibiotics… and yes there needs to be more info in relation to ALZ sufferers and UTI.

  14. Anyone have any experience with a parent with Alzheimer and the primary care giver is a hoarder?

    • Yes. My dad. Oy vey. What a mess. Its so hard to see my mom who used to hold everything together swallowed up in that mess! Don't get me wrong! He has been lovingly caring for her for over 12 years (God bless him!) but its so hard to come & visit them. I'm a nurse who lives out of state, and am trying to give 5th & 6th stage assistance, but ugh!!!!!

  15. I have discovered this blog and I am excited. I never thought about music therapy. My Mother is 85 and has dimentia. She just sits and stares. I try to get her to play games or even walk. It has been an up hill battle. I would like to be part of this blog and find out more and maybe I could provide insite to what I am experiencing..

  16. I finished the article "Care-giving Conversation . . . Your Heart and Your Head". It is mysterious how we are prompted to read something and soon realize its value, or not. Caregiver Achilles heel, that's me. No one can take care of my wife like me.
    I may ask for help from my daughter or my wife's sister. They both offer help. However, they are busy with their lives. Don't ask and don't accept. I think of our marriage vows – "in sickness and in health" – God is always there. My wife is 74, I' ll be 74 in a few days. My wife is very funny and dis-inhibited. I tell myself that my care-giving is accomplished thru faith, hope, love, laughter and patience.

  17. My sister and I started a blog in memory of our parents who both had Alz and passed away within the past yr. Please visit http://www.anniesalzangels.wordpress.com my sister has started a small volunteer group in Columbus, Ohio called Annies Angels who visit folks with alz.

    • Lisa- this happened with my dad too but I was the one giving the showers which was awful and was sooo time consuming…..is there a friend or other relative that could take him out of the house while you sneak over to get things done….this is what I had to resort to! The check writing is so sad……my dad could not write a check at all the past 6 months so I had to take away all his financial documnets etc which made him very angry but he was missing bill payments etc and I was his poa. When we would go out it would take at least an hour to get him dressed and in the car and it was so frustrating for me running around having kids myself and working two jobs. If I rushed him it was worse so I had to take days off wok etc…….it is heartbreaking and exhausting!

  18. I have had a scan of my brain that confirmed I have Alzheimer's disease. I am age 74 and am experiencing the earlier symptoms of the disease . More specifically, my problem is limited right now to losing or forgetting names of things. "Things" includes people, streets, medicines, doctor's etc.: I have joined the Alzheimer's organization in Houston, Tx , and in our meetings I have never found anyone with the specific symptoms that I have. Therefore, I would like to find one or many pers with such symptoms so that we can discuss, complain, laugh, advise, ad and generally get a a feeling t hat I'm not alone. For example, I have devised a way to use my I-Phone to hold my key words and easily use this when I need to converse. I could share that feature with others. Thanks much.

  19. My name is Phyllis I take care of my Marie. She has beginning stages of demengia . A few months ago she had surgery on her left knee. A knee replacement. I have taken care of many patients with the same sickness,but she thinks I don't know what I am doing. This is very stressful. I also live with her. Last year I took care of my father before he passed away. So she is very short when I try to help her. I have tried to do all the tools when I need it. Could someone help me with this. We have family here but no one wants to help me with this I am on my own. Last year I also went to college and graduated but, I cant work until I can trust her by her self. Thank you

  20. I'm currently a caregiver to a wonderful person. I recently cared for my mother who had dementia. She is know longer with me but I like to encourage others on this difficult journey.

    I would love to start a southern chapter for families, caregivers, and patients who in need of a support group. This disease affects everyone. Please email me if you are interested in a support group in Clinton, Waldorf, White Plains, and La Plata, Maryland. Would love to hear from you.

    Thank you for your support.

  21. I am the organizer of Lady-Links, a group of ladies who makes friendship care visits to a woman in our community who has Alzheimer's dementia. We meet with her twice a week, giving her husband a much needed break, and do activities with her that she enjoys and can successfully complete. We have a blog that describes our activities and I hope you will take a look at it to see what we do. It is our hope that others will duplicate our efforts with their friend or loved one.

    • I have a dear friend that lives about 2 hrs from me. She told me about 3 yrs ago she had memory issues. ShE is currently at home with paid 24 hr caregivers. Her husband died about 9 months ago. She has daughters, two are nurses that live close by. I have visited with her a couple of times. We had a lovely lunch together the last time. I would like some suggestions as to how I can spend some quality time with her. I can visit at least once a month. Any suggestions you can give me would be most appreciative.

  22. I just found this site. My maternal grandmother died with alzheimers. Two aunts died with alzheimers. Two appeared to have alzheimers but died before diagnosed. My uncle has alzheimers now. My mom, the youngest of eight, has alzheimers now. I realize now that symptoms were occurring about seven years ago but if your loved one has quirky behavior, it gets dismissed as just them being them. In the last year she has deteriorated to not being able to dress herself and not that she can't put clothes on; but, my mom was a clothes and shoe lover. Now she can't understand why she wears two blouses or has different shoes on her feet. She loses things on the way to one room from another within minutes. By the way, she was an impeccable dresser who had to match every piece. I keep waiting for her to try and it does not happen. My point here is to let anyone who does not know that the signs are there. A seeming irrational act that we shrug off may be a sign. My mom was determined to have her house waterproofed. She always asked her brother or my brother for their opinion. Not a big deal but it was not a necessary task. A lot of little individually unimportant things that now appear to be major signs of something.

    • Trish, hope things are as best as can be for your mom and you at this point… I know exactly what you mean by those seemingly unimportant things that were actually early signs of Alzeimer's. My mom had them – I remember thinking that she was upset at my dad, or too wrapped up in something to see things straight but whatever it was, it didn't make any sense. Another thing was that we could only talk on the phone for about five minutes, then the story would repeat itself and I knew it was time to hang up! I never thought it was Alz. just, oh wow, mom's getting senile… That was about seven years ago. Then, five years ago my dad died, and I became the main caregiver. I discovered how bad she really was, and how my dad was coping with it the best he could, for as long as he could. My mom insists on dressing herself as soon as she's out of bed in the morning. If I don't get to help her, she will put clothes on top of her nightgown, a tee shirt around her waist and so on, and yes, almost always two different shoes, but left foot and right foot are correct. Sometimes I don't know if I should laugh or cry and lots of times I do both. (silently, of course!) Stay well!

    • Hey, Trish. My mom too has always loved to dress well. My sister came up with this brilliant idea….we put together outfits by putting a rubber band around the hangers of matching pants and tops. It takes the worry and stress out for when she has to get dressed in the morning. And, the brilliant staff at the assisted living facility put a big "R" & "L on the tongues of her shoes so she knows which shoe goes where (as long as she has the ability to reason the right from the left of course).

  23. Bill Bailey, from Virginia, was a member of the National Early Onset Advisory Group. He was diagnosed in 2006. He's 64, and his condition has since declined. He is now being cared for in a nursing home close by. A story about his adventures and life living with Alzheimer's is also featured in the newest version of the book "Chicken Soup for the Soul" featuring stores about Dementia and Alzheimer's. I am his caregiver and legal guardian as well as his wife. I read with interest another exerpt from the book featured on the website, and wanted to encourage others to read this heartwarming and "from the heart" book full of tales of real individuals coping and learning while they live with Alzheimer's.

  24. I invite all to follow my blog: "A Place For Dad"…I am currently a caregiver for my father (age 84) who also has severe Glucoma/Low Vision and it is hard. I work a full time job and run a small non profit. How can I get assistance with his near "blindness"? My dad cannot see anything.

  25. I recentlly sometimes forget about names of several people I know and only remember them later ( at about a few hours or a few days later). It has never been happened before . I'm only 24 and yeap, I have quite much stress on my life.I'm afraid I got Alzheimer! Can s.o know abt it can help me figure out my status?

    • Nemok.
      you're very smart and reasonable person because you can see your problems and you can solve it easily.
      please, go see an Neurologist ask about ALZ. tests.
      my husband has been ignored for years. now he is on last steps of AlZ. and Dementia.

  26. My husband is adamant about getting a large dog,because he is afraid. Thro the blog I've found out service dogs are to expensive.we have a beagles. I'm afraid he will try to hurt our dog,so he an have another dog. I'm not able to take care of my husband and a new dog. Any ideas,I feel so guilty,denying him a dog. I'm exhausted.

  27. My wife was formally diagnosed with Alz at Barnes Clinic, St Louis, in 2008 at the age of 58. We know in looking back that she was showing signs as early as 2004. She is fairly well advanced but still eats and sleeps well. Recently she has experience a number of seizures which have produced interesting results. A few days after the first, her caregiver and I both noticed a positive change in her awareness and ability to understand and respond to questions. This lasted for a few days. About a week ago she experienced two seizures in a period of about 2 hrs. We were ready to take her to the H if she had another but did not, Several days later a similar but more dramatic change took place. She was laughing at funny statements, jabbering constantly, answering questions lucidly, remembering things in her past, etc. Is there a possibility that a positive effect of seizures could be opening new pathways in the brain? Have any studies been made on this theory? John Robertson, jarober44@gmail.com

  28. Thought maybe I should share a bit about how this disease has effected my family in ways no one had seen coming. About five years ago, my grandmother was told she had to retire. Since working from the age of twelve when the Great Depression occurred, this was a shock to her. She started to decline with hygiene as the first signs. But as family we felt she was just very forgetful and didn't pay any attention, thinking she was taken care of herself. Keeping in mind that my mother and myself live across the country from her. We live in Utah and she is in Maine.
    As time went on, my mother and I noticed each time we spoke to her on the phone something was different. One day she fell and broke her hip. My grandmother crawled to the phone to call 911. This was four years ago and she a month in rehab. My uncle from Florida was the closet one to get there and see what the situation was. I do actually have one uncle and my sister that live in Maine as well as grandmother. My sister was doing the best she could with working and helping out grandma. My uncle is just another vent post to come soon. They all made the decision, which my mother and I disagreed about was to move her to Florida. We thought it would be in her best interest to move here since I have done care providing for twenty years now. But, nope, she was moved. Not even a year later, things were not going so well. She had one shower in a year?? What were they thinking ?? First thought….some thing is wrong with this picture. My mother and I would call every week for a year to see how she was doing. Nothing was changing…so we set up for a one way ticket with no stops to move her with us…no questions asked. My uncle put her on the plane and I met her at the gate. For the past three years, I have been doing the care providing. Showers all the time, food set up for her each day and a routine of care provided. The very next day after she arrived we took her for a hair cut, which was much needed. Set up a doctors appt for her to get hip check up and found out the start of Alzheimer disease and dementia had set in.This was the toughest news for my mom to handle and still is each day. to see your own mother this way. Just recently in October 2013, she took a turn for the worst. We set up a day program each day and respite for one weekend per month at an assisted living place. (yes…assisted living) While there she fell and attempted to crawl to the restroom. They called and told us they were not sure how long she was on the floor from 2 pm to 6 pm. Okay…if I am not crazy …something is wrong with this twenty four hour watch thing. She was checked and they stated she seemed fine. Her blood pressure had rose and high temperature. But went down soon after. We think she was scared, anxiety and disoriented. So, we thought if she fell again than it was better for her there than at home. She stayed another night. Well, as you might guess…she fell again. This time I picked her up and brought her home. Since that day we brought her home, she has not walked or stood on her own. Hospice was finally started in February of this year. I still have problems with the aids they send or routine schedule. This is a must for her set schedule. The nights are tough because of sun downers. Each night is rough for everyone, especially my grandmother as she attempts to climb out of her hospital bed. Three thirty the other morning was the worst. She had both legs out of the bed under the railing and I had to push the bed down so that my mother could remove her legs without breaking them. Well, that is some of my story, as of current. It just depends on the day. Thank you for the add and I look forward to share more with everyone. As I have read many post…I thinking I may have found a great support group that we need to help in this journey we are taking. Thank you for letting me share.

  29. Several weeks ago my sister began to 'forget' things and get confused. When I spoke to her about it she told me that she was just tired (she does have several physical health problems), and so I believed her but was still concerned. Since then she has been admitted to hospital (where she stayed for 12 days and has since been sent to a Residential Home). I spoke to her several times tonight and am alarmed at the rate of deterioration in her. She rang me to tell me that they were sending her home and she was scared as she didn't want to go – it was 10.50 pm!).

    I spoke to a member of staff, gave her my number and then spoke to my sister to reassure her that no-one would send her home. I am going to the home for Sunday lunch and will talk to staff then but I know, in my heart, that I am losing my sis and all I want to do is be informed so that I can help her.

    Please advise as I love my sis dearly and will do anything to help her.

    Thank you.


    • Dawn,

      Thank you for reaching out to us.

      You can speak to someone through our free 24/7 helpline: 800.272.3900. Our professional staff will be able to provide you with reliable information about memory loss, dementia and Alzheimer's.

      Our confidential care consultation is provided by master's level clinicians who can also help with referrals to local community programs, services and ongoing support.

  30. Dear Alzheimer's,

    I hate you. With all by being I hate you. Everyone you touch withers and dies. And the rot spreads to everyone around it.

    And worse, you have no mercy. You have no compassion. You make bad days worse and the worst days unbearable. You grab hold and won't let go. You drag us through the mud and spit in our faces.

    I hate you with a passion unlike any other. You've robbed me of my Mother and have taken away my Father and replaced him with a 4 year old child. Your wake of destruction is long and wide and I hate it. It ripples beyond my understanding. The simple things are hard. The pleasurable things are forgotten.

    Alzheimer's, you ruin lives, mine included. You're stealthy, determined and patient and for those things I have you more.

    Worse, the only face you show are the people we love. How can we show our hatred to that face? You put on their skin and parade around like someone we're supposed to love. You're deceitful and cruel.

    Society doesn't see you do they? They see the faces of their Mothers and Fathers, Aunts and Uncles. What's so bad about those faces? We love those faces, we love those people. But you're in there, aren't you? Hiding behind their eyes, worming your fingers through their brains.

    You're hard to fight Alzheimer's. You take everyone you touch and we're ignorant of that. As we see are the faces we love becoming more childlike and forgetful.. It's almost sweet. "Awwwe," we say. "Look at the sweet old person with the far off look in their eyes." You can't fool me Alzheimer's. I KNOW you're in there.

    Alzheimer's, you've made an enemy. I will tell everyone I meet about you. I will make them understand how you hide ad deceive. I will ask our government to put money behind killing you. I will make you come out from behind those loving eyes and face the world for the inhumane thing that you are.

    It's the least I could do in return for all you've taken from me.

    Sign me, I hate Alzheimer's

    • Dear Bobbi, I am very sorry for your pain and I am familiar with it. I hate watching this disease take away from my mother. As you say we keep on loving our dear ones and have to be thankful for those moments of love we share in the face of our troubles. I wish the blessings of grace to you. Rachel

    • Dear Mr. Bobbi Krannich,………………..my name is Row , and my husband was officially diagnosed with EARLY ONSET ALZHEIMER"S in 2012 at the age of 54. its been a long time that i dont read blogs or article about ALZHEIMER"S , i even stopped attending the support group . , it was soooooooo upsetting . that i cant function . THANK YOU FOR WRITING THIS MESSAGE . THESE ARE THE SAME WORDS THAT I WANTED TO SPIT OUT FROM MY BEING.AND YET I DONT HAVE THE ENERGY TO SAY IT. my husband Lou as of now cant and doesnt recognized me anymore as his wife . i am only his best friend . i gave up my job , months after he was diagnosed . he was already wandering. his awareness of his surrounding is rapidly dimimnishing. we have a small family , his mom who is 82 years old living in a senior home , and tirelessly and lovingly helped us by cooking his favorite food . and his only sibling , younger brother who lives nearby pennsylvania . AND ME , who takes care of him 24 / 7. someday , and hopefully i would join to all the people globally to raise awareness of the disease and especially the CARE PROGRAM.THANK YOU FOR BEING AN ADVOCATE . …………..Sincerely .sleepless in new jersey , Row

  31. My mother has devised her own strikingly original and cleverly defiant way to cope with dementia. http://kronstantinople.blogspot.com/2014/11/i-did

    When she said she had been raped during the night, the facility hurriedly destroyed all relevant evidence and waited five hours to call me, to see if I thought we needed to "bother" calling the police, since she had "forgotten" what happened and seemed fine. It was an outrage. http://kronstantinople.blogspot.com/2014/11/if-tr

    I am appalled at the neglect of my mother's nutritional, emotional, medical and intellectual well-being that is being provided by this $74,000=per-year facility — but the other options seem even worse.

    • Sylvia,

      Thank you for reaching out to the Alzheimer's Association. You can always speak to someone through our free 24/7 helpline: 800.272.3900. Our confidential care consultation is provided by master's level clinicians who can also help with referrals to local community programs, services and ongoing support.

      You can also connect with others going through similar situations at https://www.alzconnected.org/. Here you will find support networks and a safe place to share your stories.

      You can also find resources on alz.org: http://www.alz.org/care/alzheimers-dementia-elder

      Please reach out if you have questions or concerns.

    • Dear Sylvia,
      I am a neuropsychologist that has studied the behavior associated with Alzheimer's for nearly two decades. It is wholly unacceptable for you to be enduring any neglect. This is unacceptable. I would email the author Cameron DeLong and I'm sure she would help. She was a tremendous asset to us as far as teaching, what to look for, what should AND should not occur in an Alzheimer's residence. And so much more. She is not scared to take on the big guns that simply want to fill beds for their profits. Her email is either CameronSDeLong or simply CameronDeLong @gmail.com
      I do not know how we would have endured this without her guidance and support. She wrote a guide for caregivers that is the best I've read. My father had Alzheimer's and our family turned to Cameron. Good luck to you.

  32. I visit with a alszheimer patient sometimes she talks a lot about whatever she is thinking the nurses at the home say she is agaitated is this correct

  33. My 82 year old Mom has recently been diagnosed with Alzheimer's. My wife and family live in Florida while Mom lives in Indiana. My struggle is in making the decision whether to move Mom to Florida or to relocate to Indiana.

    Does anyone have a similar experience that could offer advice or suggestions?

    Thanks so much.

    • Hello Dennis-
      I see that you wrote about 3 weeks ago, and perhaps you have made your decision as to what to do with your mother's living situation. My father-in-law passed away from Alzheimer's about 11 months ago, after living with my husband and me for three years. He had a manufactured home in Florida, and in the early stages of the disease seemed to be able to manage pretty well. But, the more we observed him and saw small indicators that he should not live alone we knew we had to bring him to Michigan to live with us.
      I will tell you it was probably the biggest trial my husband and I have ever survived! But, now that his dad is gone and we look back at how inept we felt about care giving someone with this horrible disease, we would do all over again. The only change we would make would be to ask for more help from agencies that know what a caregiver has to go through, and also training to be a good caregiver as well taking care of ourselves.
      If you move your mother close or with you, find out about support groups, day care programs, training etc. It is a lot of work and it is not easy…but the peace of mind when they pass makes it all worth it.
      Wishing you and your family well.

    • Please be careful and know that Florida has a baker act law. If in a memory care or skilled they can send your loved one to a psych ward if there behavior gets out of control. It's a 72 hr hold and you loose all your rights as your loved one.. Once they have the letter B on there chest there is not too many facilities that will take them and memory care will ask you to pay on top of what you are paying 24 hr care. Also, if by chance you need skilled it's double the price of memory and if your loved one gets assistance, medicade a bed in Florida is very hard to find. One,you need a lock down because of the Alzheimer's/ dementia we found out the hard way skilled nursing homes usually don't have a lock down unit in Florida . We had called a 23 page list in the state of Florida , we are looking at least two to three hours away. Beware of baker act Florida is the only state. Our loved ones have a disease, that facilities need to be educated on how to handle them. The care we have experienced in Florida has been horrific!!! Memory care is suppose to give them what they need and what you pay for. Not true..Alz / Dementia is not bankers hrs, it's 24/7. Good luck stay away from big corporate they are all greedy, they could care less about there care. Check out a lady in Mn her name is Judy Berry she runs Lakeview Ranch. She is the one who should be opening facilities around this country !!!! She has a great story and approach to the disease. She gets it!!!!

  34. My mom has Alzheimer's. I have been writing as a way to cope and share our story, and in a small way to advocate on behalf of those enduring this terrible disease. Would love to share it with ya'll:

    In peace and solidarity.. Jodi

  35. My 75 year old mom has Alzheimer's. I have been writing as a way to cope and share our story: https://sparkasoul.wordpress.com

  36. I have a recent interest in Alzheimer's awareness. I became aware of a woman who did a living will and was specific about her wishes regarding Alzheimer's, but because the living will was not specific enough she was kept alive much longer than she wished and suffered many injustices because of it. I also recently became aware of a living will that is written specifically for Alzheimer's disease and I can't help but think if this woman had this particular living will in place, things would have been differently. I feel it necessary to pass this information along as I feel it would be beneficial to anyone living with Alzheimer's. The site is http://www.alzheimerslivingwill.com I currently have one and can rest assured that should I fall victim to the disease my final wishes will be respected. It is specific down to nourishment and losing the ability to recognize food as necessity. I just want to spread awareness that this living will is in place. So many people are kept alive long after the brain is dead and their dying wishes go overlooked .

  37. Please look at this wonderful music video which is called Remember Me (Anthem for Alzheimer's). The music is by Chris Mann, (who is currently starring as The Phantom in the U.S. Broadway tour of The Phantom of the Opera) and his wife Laura Mann. The video was artfully directed by Laura. I know you will want to share it with everyone!
    Link to the video: http://bit.ly/RmVIDEO
    Links to the music "Remember Me" A portion of the proceeds is donated to Alzheimer's research.
    Amazon: http://bit.ly/RMamazon
    iTunes: http://bit.ly/RMItunes

  38. My father has been diagnosed with Alzheimer's and dementia, of recent he was admitted to the hospital with bacterial pneumonia. While in the hospital he was agitated and had refused to take his medication. In addition the hospital took him off all of his medication that he was in at home without telling us. My assumption is part of his actions may have been withdrawal from his pain meds as he also has a metal rod in his back with 6 screws. He was not been able to come back home as his lack of being able to eat, bathe, use the facilities and many many outbursts have gotten to a point where we can't care at home for him. He is in a very nice memory care facility however last night he had such an outburst that he threw the lamp, broke a table
    And almost threw the tv on the ground because we were trying to give him his meds and change his clothes. Is there any medication that we can give him to calm him down so to speak.

    • Renee, Please call our 24/7 helpline at 800.272.3900. You can also visit: alz.org/alzheimers-dementia-aggression-anger.asp.

  39. I am new to this blog. My husband has Alzheimer's. Tonight for the first time he got up at 1:30 and was adamant that he was going golfing and his tee time was ready. He got dressed got his golf bag and went out. I didn't k ow what to do. We live in a 55+ community on the 3rd floor. I was getting my shoes on and he came back in the door with his bags and said he forgot his shoes. I asked him to sit down for a minute and have some Pepsi. I don't know what to do if he does this again. We have an alarm on the door but he was so adamant that I undid it and let him go. How should I handle things like this if they happen again?

    • Hi Karlene,

      Please visit the Safety section of our website: http://www.alz.org/alzheimers_disease_publications__safe...

      There you will find information about wandering and MedicAlert/Safe Return. You can also call our 24/7 helpline for professional advice at 800.272.3900.

      • trazodone is a beautiful drug for sundowning…. so we have found. Only thing that has allowed me to keep from placing my grandmother in a facility as I was unable to get sleep any given night until we discovered this drug. Melatonin did notthing for her either – FYI…

  40. It’s really a cool and helpful piece of info. I’m glad that you shared this helpful info with us. Please keep us informed like this. Thanks for sharing.

  41. I was lost in the world of advocacy for years and years…mainly because my mom had AD and I was her soul caregiver without any assistance. Mom was also blind and had over a dozen other deadly diseases. I had no health care of my own all those years and walked around with painful abceses and cancers while trying to do a 24/7 job all alone without any kind of training other than caregiver chat rooms or support or competent legal or financial planning of any kind. When mom broke her hip one day, every caregiver's worst nightmare come true, she ended up in an abusive nursing home…trying to move her against and document the abuse I was actually arrested and beaten and drugged after pointing my camera at some medical director's mercedes benz who reported my camera as a "gun"…it was a nightmare…my health was ruined, our savings seized, and both of us were abused by the system. I barely survived the ordeal, my mom did not, she was killed of dehydration because I was unable to take care of her myself after having also been abused. Years later I still suffer and there was nobody to help me pick up the peices so I almost froze to death this winter. I will not even have social security. I wonder if I should just die now, there is no help…they killed my mom with abuse and neglect and they stigmatized and destroyed me. Years later I still need help getting a way to survive and I do not know what to do because there was no help so I am totally alone and totally destitute and suffering, even my food stamps were taken away because I tried to get help but there is not help for us, only drug addict and alcoholics and ex cons etc. I wonder if I am the only single caregiver that was ever treated this badly, I have in my years in forums and chats run into others that had been treated even worse, but they are now dead or homeless and soon I will be too. Here is part of my story. I am officially a non person.

  42. Hi,

    We at Shapiro + Raj, a research firm based in Chicago, are looking for national feedback from
    non-professional Alzheimer’s disease caregivers (spouses, children, friends, etc.) on new concepts pertaining to the condition. This study offers your members a rare opportunity to speak their minds to the companies working to develop solutions for their loved one with Alzheimer’s disease.

    On July 6th & 9th we are conducting paid 45 minute telephone interviews open to national caregivers.

    We are also conducting paid in-person interviews in the Chicago area on July 20th and 21st.

    This does not involve solicitation by any means, and my company is designed to be a third party to execute the research without bias, keeping all of your and your members' identifying information completely confidential from the research sponsor and from anyone else for that matter.

    This is opinion-based research (not a clinical trial.)

    Anyone interested can reach us by phone at (312) 676-8085 and refer to project #351 or they can follow the below link to go through a brief screener and we will follow up based on their qualifying responses and research openings. Please share with other caregivers!

  43. I am just starting to be in an A4 study. I am interested in up-to-date information and statistics. Very disappointed that this blog site ends in January 2014. I know that newer facts and theories are emerging almost daily. Can you tell me where to find information that is less than 1 1-2 years old? One correlation I'm particularly interested in is the use of HRT in the preclinical stages. There seems to be varying opinions, but they aren't easy to find on the Internet.

  44. i have been the sole caregiver for my mother who is in late stage alzs.I yell at her occasionally and its like i cant help it. Today
    I made homemade vegetable soup and she helped me by peeling the potatoes, which by the way she still does well. We were having lunch and I had to excuse myself to go to the bathroom and when I returned to the kitchen there she was over the vegetable soup pouring her soup in there and cornbread in the whole pot of soup and i started screaming and i called her a idiot. I feel so bad right now I hate myself and should I know. Has anyone ever did this before? I know it doesnt seem like a big thing to anyone reading this but at this time it was really big to me.

    • I learned to stop. Breath in, breath out. and relax. Ignore what caused you to say "OH my gosh, I'm going to kill her!"! Take the person by the hand, move her or him away from the spot and deal with the catastrophic mess a little later. (You can't believe the number of "catastrophic messes" I have dealt with. You don't want to know. You have yours. ) Getting yourself upset doesn't help you. You'll fell sick, or worst, you'll get sick. And, don't feel sorry about yourself. There are worst things in life, like dealing with pain. That's worst. Amen.

    • Barb, you are not alone or a horrible person. My Mom was diagnosed in 2007 and just recently passed. I miss her terribly and loved her very much. The "yelling" is part of the whole ordeal. You are sad, you are frustrated and you are angry. Not at her, but at the disease for taking her from you. And you are tired and you are stressed. And at that moment you are so frustrated, you react by yelling at her as if she was a small child. But unlike a child who eventually learns and remembers, your Mom cannot, and she has no idea what she is doing or that she has done something wrong or inappropriate. Try to "walk away" before screaming at her. Sream outside, in another room, or even your car. Think it through, take a breath and give her a hug instead. You will be so glad you did. Good Luck.

    • yeeeeeeeeeeeeeeeesssssssssssssssssss, Barb, dont feel bad ………………thats normal , we are only human , we have feelings .its not actually your mom that you got yelled at . it is the situation. i do the same thing to my husband , who was diagnosed with EARLY ONSET ALZHEIMER"S in 2012 at the age of 54. its not eaaaaaaaaaaaaaaaaaaaaaaaaaaaasy. we feeelllll guilty after that. we are actually helpless , i keep on telling myself , we are doing a great job. i always pray everyday that GOD will renew my strength and to grant me PATIENCE. IT IS OK ,BARB,,,,,,IT IS OK……………sincerely . row

    • Take time each day to sit quietly and meditate (plenty of how to books out there). You need to replenish your own self so you can deal with your mother. Take care of yourself.

    • my mom just turned 83 and she has late stages of Alzs. and I understand about the clothing and all but since she had fallen so much at the house last year this past Feb. I had to place her in a nursing home. I was her caregiver for almost 4 yrs before placing her in the home. but upto this past week she as happy and enjoyed the fellowship there with the other residence. but this week her Alzs. plus urine infection has made her very illusional as well as sleeping all the time. Today her neurologist, placed her in the hospital. So we`ll see if the infection or the Alzs. is making her this way.

  45. I am rather confused. My mother is in a nursing home in Indiana. They keep telling the family that she must be on a Gradual drug reduction. She was on aricept for quite a wile and it seemed to help. Then they just removed many of her drugs. She now stutters constantly and they say it is not the drug removal , it is merely end stage alzeihmers . We were told that neurologists have determined there are no drugs that really work for dementia. I am extremely confused. What I hear on the TV is not what I hear from CMS. I think they just don't want to pay for the drugs. Her meds are controlled not by the nurses but they are controlled through the social worker? Where are the Psychiatrists and Neurologists? Debbi Goodson

  46. What readers desperately need is answers. Answers every step of the way. Many families are frozen in fear with no sense of direction when they hear those ominous words, "your loved one has Alzheimers's disease." Cameron Delongs book, "through Toadys Eyes, shares with the reader the exact topic they will likely encounter. The topic is simply the beginning. You feel you can at least breathe after this guidebook literally lends you the knowledge and a multitude of ways to assure your loved one is being cared for in the most optimal way. The Author takes 17 years of trials and tribulations and wrote a book that you will not regret the time nor the expense. Is the best I have found.

  47. Do you have any information of Glenn Campbell participating in the clinical trial for NOBLE Study T-817 by Vanderbilt?

    Thank you.

  48. I read "A Note to Caregivers from Dan Gasby" and felt like I was looking in the mirror and reading my diary. Having just filed an application to act as a facilitator to meetings in my locale, I was inspired, to say the very least.

    Almost everyone I know is already touched by some form of dementia; and I feel, at times, as if I'm just holding on myself from that long walk into a separate reality. The walk won't be alone with the help of people like him and his wife and the message they've shared.

  49. Please post information distinguishing between young onset and early onset Alzheimer's disease. My sister was diagnosed at age 50, and I have had no luck finding others with this experience. She had early onset at a young age, and is now in late stage at 53. Younger onset is not early onset.

    • Hi Maureen, ………my husband was officially diagnosed with EARLY ONSET ALZHEIMER"S , in 2012 at the age of 54. this is a form of Azheimer's that occurs in a familial pattern and is linked to genetic deffects. but prior to that my husband was already exhibiting the symptoms of cognitive impairment ,maybe at the age of 47. and from there , he was kept on making mistakes from his job. i thought it was just stress while his boss probably thinks it was negligence and incompetence. I should have listen to him when he kept on telling me , that he has alzheimer's like his late father. At that time his father was not really properly diagnosed . and also of the stigma of having it. but his brother told me now that my husband was exactly the same like their father. because of this situation , they finally fully understand the behavior of their father.So , even his primary doctor was having a theory that my husband had already alzheimers years ago . his bloodwork was sent to massachussets and it really came out with the explanation of early onset alzheimer's..My husband as of now cant and recognized me as his wife . he slurs and he is not aware of his surrounding any more. ……….Maureen , my guess , your sister was like my husband , she was only , officially diagnosed at the age of 50 , but i think she was already have had cognitve impairment years earlier, that , that was overlooked…………..we wished we knew. ……….row

    • My mom was also diagnosed at a young age but when we finally took her rt NYC they found a brain tumor she had had since birth! She lived without any cognitive loss well into her 90's…just be aware!

  50. Hello lovely blog team, I'm looking for places to guest blog this spring: both to share lessons we've learned as a family over the past 10 years since my mom's Alzheimer's diagnosis as well as to spread the word about our new book The Grace of Dragons: Receiving the Gifts of Dementia Care Partnering. Examples of our work live here: http://www.collectiveself.com/category/care-partn…. If we seem like a good fit, and you welcome guest bloggers, let me know. I'd love to connect.

  51. How do you become a guest blogger? I have a blog about my mom called The Lemon Bar Queen. I'm a RN and my focus is home care and hospice. I have been writing for 2 1/2 years.

  52. Before you become the caregiver for your parent with Alzheimer's, be sure and have any legal documents they created reviewed by a lawyer. You want to be sure you have the legal right to make the decisions concerning your parent's health. Siblings or other relatives may want to intervene in health care decisions even though they are not the one taking responsibility for the daily care.

  53. my mom is just turning 83 and up to a year ago last February, I was her caregiver, and being her son. I came to realize that I was doing things that a few years ago I would have said you were crazy to even think I would be doing. But loving her as I did. I did step and do what had to be done. About 4 years ago she was diagnosed with early stages of Alzheimer’s. I realized that her condition was worsening every day, as well as her strength. Through the help and canceling from my girlfriend. One morning due to a fall she had a few days before she fell just in front of me. So after a day at the ER, the doctor there as well as her family doctor I decided on placing her into a nursing home and since then her Alzheimer’s gotten worse and with all her problems, my girlfriend says I need some support and need to vent my feelings and emotions on a blog. Anyone that has been through this, please feel free to add any thoughts that might help me through this part of her and my life..

  54. My grandmother, with whom I have always been close, has been battling Alzheimer's for several years. The struggles that you have described here are thing that my mother, my aunt and I have been facing for some time. In the face of the hopelessness that accompanies this disease, I wrote a novel to comfort myself. I created a fictional world that explains why this disease exists. It really helped me and seems to be a comfort to many of my readers facing the same pain. If you think it might help you, even for a moment, please read it. If nothing else, I am using it as a platform to raise awareness and funds for Alzheimer's research. The novel is called Remember For Me.

  55. Thank you first off to the ALZ for your commitment and research awareness to help fight Alzheimer’s Disease until we can make a cure. As a public health researcher with a particular interest of the environmental role of Alzheimer’s Disease Onset I wrote a research paper for my graduate term paper for my Masters of Public Health Environmental Exposures & Mental Diseases course. I wanted to share my paper with all of my fellow Alzheimer’s Disease fighters and activists. I have attached the URL at the bottom of this post to my portfolium website that showcases my research exploits during my graduate career. Thank you again and I hope you enjoy!

  56. How can I reduce my risk of developing dementia. I somethimes have a hard time remembering things. I'm not sure if it is stress that is making me forget things. Although I have no one in my family with dementia, it worries me. I am an RN. I work with many elderly people. To see someone who was once vibrant, in a state where they can't even remember their own name is heartbreaking.

    • Hello Janean. You can call our 24/7 helpline to speak to someone at 800.272.3900. You can also find information about the 10 Signs here: http://alz.org/10-signs-symptoms-alzheimers-demen

      One of the most common signs of Alzheimer's is memory loss, especially forgetting recently learned information. However, sometimes forgetting names or appointments, but remembering them later, for example, can be a typical age-related change. We recommend you speak to your doctor.

  57. Hello Team!

    I've been a caretaker for 8+ years for a loved one and wanted to know if there is a channel where I can submit op/ed pieces to support the blog. Looking for nothing more than to show support for the amazing work you do. I've been donating financially for a while now and want to help in a new way. Thank you as always for being such an inspirational source of awareness!

    • Thank you for your unconditional love and support to those with this tragic disease! People who have been affected by Alz (my grandmother, and currently my Mother is in the 6th stage at age 63), appreciate you and just wanted to give you a shout out!

  58. Hello Specialists

    I am a dental hygiene student and am writing a research paper about dental management for patients with Alzheimer's disease. I chose this topic because a member of my family had been diagnoses with dementia and I wanted to learn as much about it as I could. For this assignment I am required to interview a specialist. Would any one be available to answer a few of my questions via email? I don't anticipate the questions to take more than 15 to 20 min of your time. I would greatly appreciate it. Also, thank you for your blog it has been a great resource for me personally and for my research.

  59. I have recently started my spouse on intra- nasal insulin via a Mabis nebulizer that comes with a nasal attachment. Levemir insulin is the insulin I am using as my spouse is APO-E4 positive and in previous reports Levemir was the only insulin that worked.Started with low dose – 10 units BID and tested blood sugar which were unchanged.Now up to 45 units BID with good follerance, no complications, and no impact on blood sugar levels. After 1month I have noted significant improvement in functioning. There is an atomizer produced commercially that administers a standard dose but available only if you are in clinical study now finaally in progress ( it has been know that insulin increases CNS glucose uptake via nasal administration now for Almost 12 years but study started only now!!!!!)Mabis nebulizer not as efficient as atomizer IMO but I could not get one.i have tried a lot of RX including IVIG,LMTX and this Rx is the best.

  60. I was a long distant caregiver for my mom for several years. She went through the majority of the Alzheimer Stages. Heartbreaking… Her battled ended in 2013. As I walked through the disease with her and educated myself about ALZ and how to deal with someone who has the disease, it promoted me to assist others who are dealing with ALZ with a loved one to start a nonprofit to bring more awareness to ALZ as well as maintaining both physical and emotional health as a caregiver. We're at the beginning stages and of that support. It is so good to see younger people becoming involving themselves the fight to help find a cure for this cruel disease. It would be wonderful to connect with someone ( a millennial) who understands some parts of the disease and has a passion for seniors in general. I'm in the Dallas/Ft. Worth area and would love for that person walk with us as we share this common thread Alzheimer Disease and Caregiving. Message via FB . #ittakesallofus

  61. How can I share my journey with my mom with your readers?

  62. Alzheimer's Association is asking for petition signatures for a new initiative called "Palliative Care and Hospice Education and Training Act (S. 693 /H.R. 1676)". The petition states, "Less than half of surveyed nursing homes have some sort of palliative care program. For people with advanced dementia, such care which focuses on managing and easing symptoms, reducing pain and stress, and increasing comfort improves quality of life, controls costs, and enhances patient and family satisfaction." Long-term care facilities already offer hospice, which offers the services described above. So what is being added by including "Palliative Care"? Does Act S. 693 /H.R. 1676 plan to add assisted-suicide to its list of Palliative Care services? If so, I am sure that your readers would want to know more about this. I do not support assisted-suicide, or any form of suicide, and do not want to sign a petition that may support its use or increased use in our health care system.

    • Hello Elizabeth.

      Palliative care is appropriate at any age and any stage of a serious illness and can be applied from the point of diagnosis through the continuum of the disease. PCHETA would ensure there is an adequate workforce trained for both palliative and hospice care. PCHETA would increase the palliative care and hospice workforce by establishing training programs for doctors, nurses and other health professionals.

      PCHETA would not add assisted-suicide to the list of palliative care services. In fact, a provision included in S. 693/H.R. 1676 specifically ensures that everything in PCHETA complies with current protections in the Public Health Service Act, which prohibits "assisted suicide, euthanasia, or mercy killing".

  63. Hello, I am a student in Colorado, and I am writing a paper on Alzheimer's disease, and how to try and prevent the disease, or how to live with the disease once diagnosed. Part of my assignment is to post a paragraph about my paper to a blog about my topic. Hope this works! Thanks!
    A healthy life style means eating right, exercising, and attending social events. When we get older, we tend to forget to keep a healthy lifestyle, or get too tired to keep up with a healthy lifestyle. Unhealthy eating habits and lack of exercise can have major consequences on the body. Including cardiovascular problems, weight gain, diabetes, and other medical conditions. Having these medical issues when older, along with other poor lifestyle choices, and family history of Alzheimer’s, can increase the chance of someone developing Alzheimer’s Disease and dementia. Although there is no cure for the disease once diagnosed, there are ways to help prevent it, and ways to help slow the progression of the disease. Once diagnosed, ways to prevent the progression of Alzheimer’s is with healthy eating habits, exercising, and brain stimulation.

  64. I'm trying to anticipate what is the best way to tell a mid level Alzheimer's patient that someone close is dying. Is such news likely to have an impact in the disease advancement? Is it best to wait until after the death occurs?

    • Mary, Thank you for your comment. Please call our professional Helpline at 800.272.3900. It is free and available 24/7. We are here to help!

  65. Hello,
    I am 29 years old and recently lost my mom to Alzheimer's. I was looking to find a way to share my story with other readers in hopes that people my age can find stories and experiences to relate to. I noticed when I would look to read up on things myself, most caregivers or children of those with Alzheimer's were already much older than myself. Is there a way I'm able to share my experiences and my mom's story with your readers? Thank you.

  66. My mom has advanced dementia. She has 24 hour care in her home and we recently had hospice started. she quit eating about a month ago but does take a nutritional drink, The last few days she has eaten a little bit. Did we start hospice to soon?

    • Hello,

      Please contact us at our toll-free 24-hour Helpline to speak to a professional about your situation, worried. We can help guide you through this time. 800.272.3900.

    • My mother lived about a year and a half solely on ensure. She would have lived longer but she had a tumor on her shoulder that became painful. She then started pain medication whereupon she quit eating and drinking. She died within a month of beginning strong painkiller.

  67. Thanks for finally writing about >Our Blog Team | Alzheimer's

    Association | Blog <Loved it!

  68. I have a question regarding my 83 yr old mother with moderate vascular dementia. Is moving into a new home a devastation to them? The place we currently live she has been for 20 years, and I am constantly needing to reminder her of this. So, I'm not sure I believe that a move within the same town just different place would be horrible or any different really.

    Your thoughts? And thank you.

  69. It seems to me that the "Alzheimer folder" has become a catch all for the elderly that can't find their keys. Much like anyone who may have pain the docs can't diagnose or are just plain tired of listening to "i always hurt" goes into the "must be fibromyalgia" folder. Is it also a fact that Alzheimer symptoms are all applicable to other problems and that Alzheimer can not be truly know until the brain is dissected. hopefully after death

  70. Curious to know if there is any connection between dehydration and dementia……I am concerned about my mother's ability to hydrate; she doesn't like to drink too much water as she suffers from incontinence. I sometimes think she may have less confusion if she would just stay hydrated! She has been diagnosed with dementia going on 4 years now but this last year we have seen a severe downturn in her ability to reason.

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