Jun 212014
 
Twirling to End Alzheimer's

On The Longest Day, I will be fundraising for the Alzheimer’s Association doing something I love, baton twirling. I have worked hard to get the word out by making announcements at schools, handing out flyers and posting advertisements in my local newspaper, encouraging boys and girls age 6 and older to participate. Alzheimer’s disease is a rapidly-growing epidemic, and I think that kids need to understand what Alzheimer’s really is. Nearly 11 years ago, my [...]

Jun 212014
 
Advocating for Early-Onset Alzheimer’s — One Letterbox at a Time

My family and I have set out for a great day of scavenger hunting, in the form of letterboxing, as our way of participating in The Longest Day, a summer solstice event where people around the world do activities  they love as a way to raise awareness and funds for the Alzheimer’s Association. I was diagnosed with younger-onset Alzheimer’s and chorea, a movement disorder, around the age of 40. I also have two siblings and parents [...]

Jun 202014
 
The Bridge Ladies Challenge the Motorcycle Club to Ride for a Good Cause

Today, just after the sunrise, a group of motorcycle riders met at a truck stop in West Monroe, La., to ride our Harley Davidson bikes down to New Roads, La., a historic district just outside of Baton Rouge, about three and a half hours away. Across the bridge in Monroe, a group of ladies gathered to play bridge from morning to night. You might be wondering what these two seemingly unrelated events have to do with [...]

Jun 202014
 
Making Korean Lucky Pouches in Honor of My Grandmother

Today, my three siblings, several friends and I are packed inside my small apartment in New York to make Korean lucky pouches, called “jumoni,” from sunrise to sunset as our way of participating in The Longest Day, an event to honor those facing Alzheimer’s. These small, colorful pouches made out of cloth and drawn closed at the top with a braided string were traditionally filled with money or special treats and given to small children [...]

Jun 202014
 
16 Hours of Playing Video Games to Mark The Longest Day

Playing video games for 16 hours is normal for a teenager on summer vacation, but if a bunch of adults were doing it, they would be said to be wasting their day. Not when those adults are defending castles from dragons or hunting zombies to participate in The Longest Day. For 16 hours today, a group of gamers — my fellow coworkers at Geektriumvirate.com, my girlfriend and I — are playing video games to honor those [...]

Jun 202014
 
Today I Trek the Appalachian Trail to Fight Alzheimer’s

Today, I began the second half of my thru-hike of the Appalachian Trail as part of The Longest Day, an event to fight Alzheimer’s. A thru-hike is a long-distance journey from trail beginning to end. I am dedicating this hike to my mother, Debbie, who at the age of 52, was diagnosed with younger-onset Alzheimer’s. My mother is the most caring, loving, kind-hearted, independent woman who has ever graced this earth. From the moment I [...]

Jun 172014
 
Fighting Alzheimer's From Sunrise to Sunset

In the Fall of 2010, my family and I received the worst news we had ever had—my 57-year-old mom had dementia.  It’s been four years since we received that initial diagnosis, and the reality and complexity of the disease is only getting more and more difficult to comprehend. I’ve spent the last year watching my mom’s motor skills and memory decline and it truly breaks my heart.  I can’t imagine my life without her, and [...]

Jun 242013
 
300 Miles to Remember

When my friend Kim and I first heard about The Longest Day last year, we immediately knew what activity we wanted to do: Run! We both had been running and participating in road races for several years and the event seemed like a perfect opportunity to use our hobby to raise funds for an important cause.  For the second year in a row, we ran during the entire 16 hours of daylight as a two-person [...]

Jun 212013
 
With Hope and Strength for Margie

My wife of 32 years, Margie, started showing symptoms of Alzheimer’s at age 50. Three years later, we met with her primary care physician who ran down the list of warning signs. He was sure it wasn’t Alzheimer’s because “she was way too young for that.” He was wrong. Now at age 57, Margie is in the late stages of younger-onset Alzheimer’s. Margie’s mother died of Alzheimer’s in 2010 and her sister, now in her [...]

Jun 212013
 
For the Love of LuLu on The Longest Day

My mom, whom we lovingly call LuLu, was diagnosed with Alzheimer’s in 2008. We have been through quite the journey ever since.  There have been challenging and scary times when we didn’t know what might lie ahead, and there have also been incredibly inspiring times, when we’ve been touched by others who readily jump in to help based on their own experiences with Alzheimer’s.  When I heard about The Longest Day, a 16-hour Alzheimer’s Association [...]

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