Dec 162009
 
Advocacy in India

Mike Splaine, Director of State Policy and Advocacy Programs, recently traveled to India to meet with the Alzheimer’s and Related Disorders Society of India. Mike shares some of his experiences about the trip below. It is hard to imagine meeting the challenge of Alzheimer’s disease in a developing country with limited infrastructure. Alzheimer’s and Related Disorders Society of India (ARDSI) is doing just that. I had the privilege of joining our colleagues from ARDSI as [...]

Nov 132009
 

When the Breakthrough Act was introduced in 2007, it took 19 months to gain 92 cosponsors and the bill was never brought to a vote. The Alzheimer’s Breakthrough Act (S.1492/H.R.3286) was reintroduced in July. Over the last five months, efforts by Alzheimer advocates have helped bring 101 cosponsors to support this bill. Although we still have a long way to go in the process of the Breakthrough Act becoming law, we need to keep up [...]

Oct 262009
 

It’s a busy time in Washington. In addition to health care reform, Congress is busy finishing the Appropriations bills in both the House and the Senate. We want to make sure the bills include funding for Alzheimer’s disease research at the National Institutes of Heath (NIH) and funding for the Healthy Brain Initiative at the Centers for Disease Control (CDC). Write your members of Congress and urge them to support Alzheimer’s research. Check out our [...]

Oct 152009
 
Annual Reagan Run

We had the privilege this week of visiting with some outstanding Alzheimer’s advocates from Bucknell University in Pennsylvania – the Beta Mu Chapter of the Tau Kappa Epsilon Fraternity. On Columbus Day, these students completed their annual Reagan Run, in honor of Ronald Reagan, one of their more famous brothers. The run took them from the steps of their campus to the front lawn of the White House. For more information on the Ronald Reagan [...]

Sep 242009
 

Reposted from The Huffington Post. As 78 million American baby boomers age, the prevalence of Alzheimer’s disease will skyrocket. Economically, it has the potential to bankrupt an already fragile health care system. Socially, we have yet to overcome much of the stigma associated with it. In terms of basic knowledge and research, Alzheimer’s is progressive, it is fatal, and there is currently no cure for it. Despite these sobering facts, great progress is being made [...]

Sep 212009
 

One way the Alzheimer’s Association is marking this day is through the release of the 2009 World Alzheimer Report. The report shows that the number of people with Alzheimer’s and other dementias is rising substantially worldwide. The impact on families, governments, and national healthcare systems will be immense, and it is essential that governments respond to this significant global public health threat now. The Alzheimer’s Breakthrough Act of 2009 (S. 1492/H.R. 3286), introduced in the [...]

Sep 092009
 
Tailgate to Tackle Alzheimer’s

The following is the story of an actual Tailgate to Tackle Alzheimer’s event, which raised money to support the Alzheimer’s Association. Wow, what a game. I knew that watching my favorite college football team was going to be a blast but luckily we were able to also turn it into something good. This past fall we hosted a Tailgate to Tackle Alzheimer’s event before and after our game. We combined our usual gathering of friends [...]

Sep 042009
 

This weekend wraps up a month of in-district action where advocates asked our federal officials to pass health care reform this year that includes long-term services and supports for people with Alzheimer’s and to co-sponsor the Alzheimer’s Breakthrough Act.I want to personally thank the thousands of advocates who carried our messages into town hall meetings and district offices. Our Washington, DC staff will follow up on all of your efforts. Congress returns to Capitol Hill [...]

Aug 312009
 

The message — that Advocacy is both rewarding and straightforward — comes through in the following dispatch from Gabrielle Corey in West Virginia: “Justin Knabb and I (decorated in purple “STOP Alzheimer’s NOW” stickers!) headed to a town hall meeting in the beautiful Erma Byrd Gallery of the University of Charleston where WV Senator Jay Rockefeller was scheduled to talk about health care reform. After Sen. Rockefeller discussed his health care reform initiatives, he opened [...]

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