Oct 132016
My Mother’s Fight Continues Through Me

When my mother was diagnosed with Alzheimer’s disease, I was a healthcare professional working in assisted living. I didn’t have much personal experience with dementia or first-hand knowledge of what it would be like to walk with someone on this journey. Suddenly, it became my mother’s journey and, eventually, my story as well. My sisters and I bought every book we could find about this terrible disease. “You read these three, I’ll read these four.” […]

Oct 112016
Finding Unexpected Gifts Deep in a Crisis

“Come on, Carlen,” Martha said. “Let’s get out there now!” My wife was anxious to see two of her paintings on exhibit in an art show on St. Pete Beach. Martha scurried straight to her paintings when we walked through the door that Friday. “Look, here they are,” she said, grabbing my hand. You’d think there were no other paintings in this show, I thought as I smiled. She beamed as she looked at them […]

Sep 292016
Our Most Precious Moments

The memories of our grandmothers – and the urgent need to protect our own parents from this disease – propelled our family to join the Alzheimer’s Association in Walk to End Alzheimer’s. We walk because it is our greatest hope that, in the near future, no one else will have to experience this disease the way our family has. Our family grew up on Staten Island, New York. Surrounded by grandparents, aunts, uncles and cousins, […]

Sep 012016
Waking Up to Sunshine

Family, fitness and faith are all at the center of my being. I was a caregiver for 13 years for two of the most important men in my life – my fathers. Like many caregivers, I experienced the joy and heartbreak of caring for my parents. It was a journey that sometimes made me laugh and sometimes made me cry. When my father was diagnosed with dementia after suffering from two strokes, I was concerned […]

Aug 192016
A Wedding Dance and a Walk

My mom has been living with younger-onset Alzheimer’s for over nine years, diagnosed when she was just 53. This is why I walk to end Alzheimer’s. This year will be my fourth Walk in honor of her and the millions of people diagnosed with this disease. Some people mistakenly think that Alzheimer’s is a “cute” disease that happens to old people when they lose their memory. When I posted a video on Facebook last year […]

Jun 292016
A Passion for Compassion

Nikki Dodson is care partner for her husband Ken who has younger-onset Alzheimer’s disease. They are both 37 years old. We spoke to them about their reality of being a young family with a very unique story and a huge passion for ending Alzheimer’s. Nikki Ken received his Alzheimer’s diagnosis a week before his 30th birthday. Needless to say, it was a very difficult time. Even gaining access to some Alzheimer’s informative resources has been […]

Jun 032016
Alzheimer’s: A Real Love Story…

TRUTH: Alzheimer’s is more than memory loss. It is common knowledge that Alzheimer’s robs people of their ability to remember, but other truths about the disease remain unknown. This June, we are debunking harmful misconceptions that keep people from seeking a diagnosis and that reduce access to needed resources and support services. Uncover the truths and take action to help end this disease. Julia Balson, a slight, red-haired woman with a big smile, English accent […]

Apr 272016

Being a mom is no easy task. It involves headaches, backaches, heartaches and plenty of exhaustion. It can also be one of life’s greatest joys. Being a caregiver is a difficult role. Approximately two-thirds of caregivers are women, and over one-third of dementia caregivers are daughters. We know that mothers and daughters share a unique bond, and this Mother’s Day, we are celebrating mother-daughter relationships that are truly as unique as they come. Watch these videos to […]

Feb 112016

In honor of Valentine’s Day, we are featuring video blog stories of couples who are dealing with Alzheimer’s. Setting any commercial hype around the Valentine’s Day holiday aside, love is all that really matters. Love is what brings couples together and helps them build lives together. Love is what keeps a care partner going on the difficult days. Enjoy the videos below to learn what Valentine’s Day means to those living with Alzheimer’s, from wedding […]

Jan 212016

“Was I there, too?” Mom asks as my dad tells us about a concert they attended Monday night. “Of course,” he responds. “I don’t remember,” Mom replies. “I don’t even know if I’m here or there.” We laugh, because in context, it’s funny. What it means, however, is that Mom is aware of her memory loss, of her dislocation from time, of her inability to live beyond the moment. We’ve accepted this about her. And […]

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