Jun 132017
 
A Proud Father with Alzheimer’s Walks His Daughter Down the Aisle

The fact that my dad even knows who Matt is feels quite incredible. My dad was diagnosed with early-onset Alzheimer’s disease 11 years ago, and my husband Matt came into our lives just three years ago. What makes my heart soar is how they’ve become best buddies. My dad still lives at home with my mom, his soulmate turned full-time caregiver. While he cannot be left alone, dress himself, buckle his seatbelt, or even open […]

Jun 022017
 
Facing the Music: Kim Campbell Talks Alzheimer’s, Caregiving and Disco Meets Country

My husband, country music star Glen Campbell, was diagnosed with Alzheimer’s in 2011. In 2014, the documentary film “Glen Campbell: I’ll Be Me” shared Glen’s 151-concert “Goodbye Tour” with millions of people. It was empowering to share our family’s story with the world, but it was just the beginning of our continuing journey with this devastating disease. Throughout his life, Glen demonstrated how the power of love, laughter, friendship, faith and music helped him overcome […]

Apr 042017
 
Funny Face

“Mom has been very belligerent this morning,” Daddy told me on the phone. I was on the last leg of my journey to their apartment, having boarded the shared taxi from Tel Aviv to Netanya. “She’s been shouting and yelling. She pushed me out of the bathroom and swore at me and called me a ‘dirty old man.’ Then she refused my help getting dressed. I wanted you to know.” I was still about forty-five […]

Jan 132017
 
Rings on Her Fingers

My dad and I tried to take Mom’s rings off today, but we had no success. In addition to her wedding and engagement ring, Mom wears four other rings, each one tightly hugging her fingers, so much so that even with liberal amounts of lubrication, the rings do not come off. She’s been wearing them for so long that her fingers have shaped themselves around the rings. Mom has gained weight and her fingers are […]

Nov 142016
 
Finding Joy in the Face of Alzheimer’s: Richard Lui Talks Family & Long-Distance Caregiving

We sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. Every week, Richard travels coast-to-coast to be with his family. Tell us about your father Steven’s Alzheimer’s diagnosis and how it came about. It began with a diagnosis of dementia. The interesting part is my Dad never had a great memory – it was something we joked about. However, what […]

Oct 202016
 
Thank You for Loving Me

In 2015, I was diagnosed with younger-onset Alzheimer’s disease. My father, 85, and the youngest of 10, is living with Alzheimer’s, as well as one of his brothers. Their father also had the disease. Still fresh in my mind is an early incident at my grandparent’s home. My grandmother was trying to tell my grandfather where the closet was so that he could hang his coat, as he had done so many times before. He […]

Oct 132016
 
My Mother’s Fight Continues Through Me

When my mother was diagnosed with Alzheimer’s disease, I was a healthcare professional working in assisted living. I didn’t have much personal experience with dementia or first-hand knowledge of what it would be like to walk with someone on this journey. Suddenly, it became my mother’s journey and, eventually, my story as well. My sisters and I bought every book we could find about this terrible disease. “You read these three, I’ll read these four.” […]

Oct 112016
 
Finding Unexpected Gifts Deep in a Crisis

“Come on, Carlen,” Martha said. “Let’s get out there now!” My wife was anxious to see two of her paintings on exhibit in an art show on St. Pete Beach. Martha scurried straight to her paintings when we walked through the door that Friday. “Look, here they are,” she said, grabbing my hand. You’d think there were no other paintings in this show, I thought as I smiled. She beamed as she looked at them […]

Sep 292016
 
Our Most Precious Moments

The memories of our grandmothers – and the urgent need to protect our own parents from this disease – propelled our family to join the Alzheimer’s Association in Walk to End Alzheimer’s. We walk because it is our greatest hope that, in the near future, no one else will have to experience this disease the way our family has. Our family grew up on Staten Island, New York. Surrounded by grandparents, aunts, uncles and cousins, […]

Sep 012016
 
Waking Up to Sunshine

Family, fitness and faith are all at the center of my being. I was a caregiver for 13 years for two of the most important men in my life – my fathers. Like many caregivers, I experienced the joy and heartbreak of caring for my parents. It was a journey that sometimes made me laugh and sometimes made me cry. When my father was diagnosed with dementia after suffering from two strokes, I was concerned […]

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