Sep 272017
 
Shared Genes

There is no escaping the similarities between us. Mom and I look alike. We dress alike. (We both wore blue dresses on Rosh Hashanah, and on Sunday, we were wearing black skirts and white t-shirts, definitely unintentional on my part.) We walk alike. And our voices are somewhat similar, too, despite my American versus her British accent. I am reminded of these facts every time we are together. It is not something I can avoid: it is genetically determined. I keep […]

Sep 202017
 
My First Memory of Teamwork: A Former NFL Player Walks to End Alzheimer’s for His Grandfather

I learned about the concept of teamwork from my grandfather when I started playing youth football in 1992. That year our team was awful, both on the offensive and defensive lines; we went winless the entire season. This made me miserable. I was the biggest and fastest kid on the team but wasn’t even playing in a featured position. My granddad went to every single one of my games, as he lived just five minutes […]

Aug 142017
 
Caregiver Wife Increases Her Walk to End Alzheimer’s Team Goal to $20,000

Amazing how a simple three-letter word provides an instant impact to Charlotte Jackson’s quest to help end Alzheimer’s. Ask. “The worst they can say is no,” Charlotte says of her simple strategy to build a bigger support group. “I learned how to ask at the very beginning, and so many people have come through for me.” Charlotte’s husband Bill – today “a young 70,” Charlotte says – was diagnosed with Alzheimer’s in 2008. In 2012, […]

Jul 182017
 
A Moving Experience

There are boxes stacked neatly in my parents’ apartment, evidence that they are truly going through with their move in two months to Beer Sheva. There’s so much left to pack—a life’s collection—that I suggested that my dad start early and work in short shifts. And with another heat wave gripping Israel, today during my visit, we decided to stay inside and clear out some of the cupboards. Our rule of thumb: if an item […]

Jun 132017
 
A Proud Father with Alzheimer’s Walks His Daughter Down the Aisle

The fact that my dad even knows who Matt is feels quite incredible. My dad was diagnosed with early-onset Alzheimer’s disease 11 years ago, and my husband Matt came into our lives just three years ago. What makes my heart soar is how they’ve become best buddies. My dad still lives at home with my mom, his soulmate turned full-time caregiver. While he cannot be left alone, dress himself, buckle his seatbelt, or even open […]

Jun 022017
 
Facing the Music: Kim Campbell Talks Alzheimer’s, Caregiving and Disco Meets Country

My husband, country music star Glen Campbell, was diagnosed with Alzheimer’s in 2011. In 2014, the documentary film “Glen Campbell: I’ll Be Me” shared Glen’s 151-concert “Goodbye Tour” with millions of people. It was empowering to share our family’s story with the world, but it was just the beginning of our continuing journey with this devastating disease. Throughout his life, Glen demonstrated how the power of love, laughter, friendship, faith and music helped him overcome […]

Apr 042017
 
Funny Face

“Mom has been very belligerent this morning,” Daddy told me on the phone. I was on the last leg of my journey to their apartment, having boarded the shared taxi from Tel Aviv to Netanya. “She’s been shouting and yelling. She pushed me out of the bathroom and swore at me and called me a ‘dirty old man.’ Then she refused my help getting dressed. I wanted you to know.” I was still about forty-five […]

Jan 132017
 
Rings on Her Fingers

My dad and I tried to take Mom’s rings off today, but we had no success. In addition to her wedding and engagement ring, Mom wears four other rings, each one tightly hugging her fingers, so much so that even with liberal amounts of lubrication, the rings do not come off. She’s been wearing them for so long that her fingers have shaped themselves around the rings. Mom has gained weight and her fingers are […]

Nov 142016
 
Finding Joy in the Face of Alzheimer’s: Richard Lui Talks Family & Long-Distance Caregiving

We sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. Every week, Richard travels coast-to-coast to be with his family. Tell us about your father Steven’s Alzheimer’s diagnosis and how it came about. It began with a diagnosis of dementia. The interesting part is my Dad never had a great memory – it was something we joked about. However, what […]

Oct 202016
 
Thank You for Loving Me

In 2015, I was diagnosed with younger-onset Alzheimer’s disease. My father, 85, and the youngest of 10, is living with Alzheimer’s, as well as one of his brothers. Their father also had the disease. Still fresh in my mind is an early incident at my grandparent’s home. My grandmother was trying to tell my grandfather where the closet was so that he could hang his coat, as he had done so many times before. He […]

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