Nov 142016
 
Finding Joy in the Face of Alzheimer’s: Richard Lui Talks Family & Long-Distance Caregiving

We sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. Every week, Richard travels coast-to-coast to be with his family. Tell us about your father Steven’s Alzheimer’s diagnosis and how it came about. It began with a diagnosis of dementia. The interesting part is my Dad never had a great memory – it was something we joked about. However, what […]

Oct 212016
 
The Hardest Goodbye: A Granddaughter’s Story

I was 15 years old when I found out my grandmother was diagnosed with Alzheimer’s disease. I had heard of it. I knew about it from friends who had grandparents who suffered through it (and I’d seen The Notebook a million times), but nothing can ever prepare you for what comes after the diagnosis. I tried to convince myself over and over that she would suffer less because there would come a point that she […]

Oct 112016
 
Finding Unexpected Gifts Deep in a Crisis

“Come on, Carlen,” Martha said. “Let’s get out there now!” My wife was anxious to see two of her paintings on exhibit in an art show on St. Pete Beach. Martha scurried straight to her paintings when we walked through the door that Friday. “Look, here they are,” she said, grabbing my hand. You’d think there were no other paintings in this show, I thought as I smiled. She beamed as she looked at them […]

Aug 222016
 
Without Action, Alzheimer’s Will Overwhelm Federal Budget by 2050 – Part II

This is part two of a three-part series on the need to act decisively to address the Alzheimer’s crisis. Part one reviewed the fiscal imperative to address the Alzheimer’s crisis, while part three reveals public opinion on the need for government to act. The Research Imperative The federal government has taken several important steps in recent years to address this looming crisis. The National Alzheimer’s Project Act (NAPA), passed unanimously by Congress in December 2010 and […]

Jun 292016
 
A Passion for Compassion

Nikki Dodson is care partner for her husband Ken who has younger-onset Alzheimer’s disease. They are both 37 years old. We spoke to them about their reality of being a young family with a very unique story and a huge passion for ending Alzheimer’s. Nikki Ken received his Alzheimer’s diagnosis a week before his 30th birthday. Needless to say, it was a very difficult time. Even gaining access to some Alzheimer’s informative resources has been […]

Feb 112016
 
Why Does Alzheimer’s Disease Affect More Women Than Men? New Alzheimer’s Association Grant Will Help Researchers Explore That Question

Women are disproportionately affected by Alzheimer’s disease (AD). Nearly two-thirds of the more than 5 million Americans living with Alzheimer’s are women and two-thirds of the more than 15 million Americans providing care and support for someone with Alzheimer’s disease are women. This devastating disease places an unbalanced burden on women at work and at home, forcing them to make difficult choices about their careers, their relationships and  their futures. As real a concern as […]

Nov 102015
 
When the Going Gets Tough, the Tough Get Going

When I was in graduate school, I lived in an apartment with two roommates, and the three of us rotated the household responsibilities of cleaning and cooking. During a week when it was his turn to cook, my one roommate told us about a free dinner on campus. At the time, I was seeing a girl I had been dating throughout college, but that night I talked for two hours with a girl that sat […]

Nov 052015
 
A Lasting Impression

I don’t have Alzheimer’s, and I’m not a caregiver for someone who does. I have no family members suffering from Alzheimer’s. In fact, my family has no history of Alzheimer’s disease. My name is Wes, I’m 36 years old, and the Alzheimer’s Association has been my charity of choice for more than 10 years. “What?” “Why?” It’s true; I’m not your “typical” advocate. But the truth is that this disease has made a lasting impression […]

Oct 272015
 
A Note to Caregivers from Dan Gasby

Two years ago, when B. got her diagnosis, I made the same assumption that almost all newcomers to this challenging subject do. I thought it was all about the loved one who now had Alzheimer’s. She was the patient — or maybe the word I used more often was “victim.” She was, and she is. But the challenge, I came to see, was just as formidable for me as it was for her. I don’t […]

Aug 202015
 
A Love Like That

My mother told me, when I was rather young, that no one’s soul ever dies. I imagine that each memory is a small flame, burning amidst so many others. They eventually create a swirling, shimmering glow, illuminated by love, flying up, up, up, until they light the sky with a brilliant glow. As we walked through the halls of the clinic, I spotted a ninety-year-old woman on her bed, eyes wide, mouth open as if […]

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