Oct 202016
 
Thank You for Loving Me

In 2015, I was diagnosed with younger-onset Alzheimer’s disease. My father, 85, and the youngest of 10, is living with Alzheimer’s, as well as one of his brothers. Their father also had the disease. Still fresh in my mind is an early incident at my grandparent’s home. My grandmother was trying to tell my grandfather where the closet was so that he could hang his coat, as he had done so many times before. He […]

Sep 012016
 
Every Step Is a Step that Matters

I’ve been a proud team captain for Walk to End Alzheimer’s for five years. I walk for all those living with Alzheimer’s, including myself. I started having trouble with my memory in my 40s. I worked in a doctor’s office as a nurse and suddenly I forgot how to calculate inches to feet in height. Then, I couldn’t remember what shots were given at what age. Eventually, I forgot how to spell the doctor’s name. […]

Dec 152015
 
Joy, Peace and Hope

The holiday season that commences with Thanksgiving and concludes on New Year’s Day is one of my absolute favorite times of the year. Even though I struggle with the daily demands of younger-onset Alzheimer’s disease, this time of year is special because I am filled with the joy, peace and hope. I was diagnosed with Alzheimer’s disease in November of 2009, so I’ve had lots of time to learn to cope with the challenges of […]

Nov 202015
 
Why I Give to #ENDALZ

There is a day for giving thanks, and now there is a day dedicated to giving back. December 1 marks the fourth year of Giving Tuesday, a global day of charitable giving. Thanks to our generous donor, Vicky Patel, your donation on Giving Tuesday can go twice as far. She’s agreed to give the Association $1 million if we can raise the same amount by December 31. Giving Tuesday is fueled by the power of social media and by […]

Nov 182015
 
A Family Affair

It’s a lot easier to say change isn’t easy than it is to experience change yourself.  I recently found this out firsthand when I said goodbye to friends, residents and coworkers at Brookdale Hillsborough, where I served as the Clare Bridge program manager for two years. In becoming the new executive director at Brookdale Hamilton, I wouldn’t be far away geographically, but away from the “family” I had grown to love. Clare Bridge is Brookdale’s […]

Nov 102015
 
When the Going Gets Tough, the Tough Get Going

When I was in graduate school, I lived in an apartment with two roommates, and the three of us rotated the household responsibilities of cleaning and cooking. During a week when it was his turn to cook, my one roommate told us about a free dinner on campus. At the time, I was seeing a girl I had been dating throughout college, but that night I talked for two hours with a girl that sat […]

Oct 272015
 
My Care Partner Is My Hero

I first met my now-wife Shannon at work. I was her supervisor, and since she knew the responsibilities of the department inside and out, I leaned on her for assistance. We started to get to know each other on a more personal level and then we started dating. She asked me out – I had no idea she liked me in that way! After dating for some time, she took me to Disney World and […]

Aug 202015
 
A Love Like That

My mother told me, when I was rather young, that no one’s soul ever dies. I imagine that each memory is a small flame, burning amidst so many others. They eventually create a swirling, shimmering glow, illuminated by love, flying up, up, up, until they light the sky with a brilliant glow. As we walked through the halls of the clinic, I spotted a ninety-year-old woman on her bed, eyes wide, mouth open as if […]

Jul 062015
 
Be the Change You Wish to See in the World

Five years ago, after being diagnosed with Alzheimer’s, my mom Sonia moved from Chicago to Missouri. She lived with my brother for a month and then with my sister for about a week. It was soon obvious that I had to take over the responsibility of being her primary caregiver. We were always inseparable, but now we are more inseparable than ever. Due to a very long history of Alzheimer’s in my family, I was […]

Jun 262015
 
I Am More than My Diagnosis

Tim, diagnosed with Frontotemporal dementia in 2012, living with HIV Working in information technology and then for many years as a part of a management team, my career was very important to me. At the end of 2009, however, I realized that I was having trouble focusing on my job, and one day after a lunchtime walk, I felt like I had lost sight in one of my eyes. Thinking it was due to stress, […]

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