Aug 202015
A Love Like That

My mother told me, when I was rather young, that no one’s soul ever dies. I imagine that each memory is a small flame, burning amidst so many others. They eventually create a swirling, shimmering glow, illuminated by love, flying up, up, up, until they light the sky with a brilliant glow. As we walked through the halls of the clinic, I spotted a ninety-year-old woman on her bed, eyes wide, mouth open as if […]

Jul 062015
Be the Change You Wish to See in the World

Five years ago, after being diagnosed with Alzheimer’s, my mom Sonia moved from Chicago to Missouri. She lived with my brother for a month and then with my sister for about a week. It was soon obvious that I had to take over the responsibility of being her primary caregiver. We were always inseparable, but now we are more inseparable than ever. Due to a very long history of Alzheimer’s in my family, I was […]

Jun 262015
I Am More than My Diagnosis

Tim, diagnosed with Frontotemporal dementia in 2012, living with HIV Working in information technology and then for many years as a part of a management team, my career was very important to me. At the end of 2009, however, I realized that I was having trouble focusing on my job, and one day after a lunchtime walk, I felt like I had lost sight in one of my eyes. Thinking it was due to stress, […]

Jun 232015
Stories My Grandfather Told Me

I am sitting at a dinner party in Deauville, France, listening to my grandfather recount stories I’ve heard him tell a thousand times before; times spent with Peter O’Toole in the desert, his love affair with Barbra Streisand and with other leading ladies, past exploits at card tables and racetracks. But this night is different. The stories are off; rich details normally embedded like fine jewels are missing. The characters are colorless and the anecdotes lack grounding in space and time – […]

Jun 212015
Hope in the Future and Beauty in the Moment

“There is hope in the future and beauty in the moment.” The Longest Day has afforded us the promise of this statement. When my incredible husband Steve was diagnosed nearly four years ago with younger-onset (also known as early-onset) Alzheimer’s, we knew we needed guidance. The Alzheimer’s Association has provided us with that and more. The Longest Day gave us an opportunity to take an active role. It also provided us with a chance to […]

Jun 212015
I Climb Mount Whitney on Mom's 80th Birthday, The Longest Day

June 21 is my mom’s 80th birthday, but she doesn’t know that. She doesn’t know what day it is anymore. She doesn’t even know what a birthday is. My mom has late-stage Alzheimer’s. Today, on her birthday, I am climbing a mountain in her honor by participating in the Alzheimer’s Association’s annual event The Longest Day. Along with 10 friends, I’m climbing Mount Whitney, the tallest mountain in the continental U.S., to raise money so that the […]

May 142015
Mother and Child

When I presented Mom with her birthday present, I couldn’t get my phone to record her reaction. The present was a big frame with eight photos of our family, and she loved it. So, what did I do? I took back the present, waited about 10 minutes, and gave it to her again. This time I filmed it—the same, wondrous reaction to seeing all her loved ones is now recorded. I’m both amused and horrified […]

May 072015
Remember Me, An Excerpt from Chicken Soup for the Soul: Living With Alzheimer’s & Other Dementias

The purpose of life is a life of purpose. ~Attributed to both Ludwig Wittgenstein and Robert Byrne I was a nurse for thirty years. Near the end of my career, I began to notice that I was struggling to complete daily tasks. There was always an excuse; I was tired or had worked too many hours. I began having trouble with my knee and took time off work to have surgery. It was during this time […]

Feb 052015
Cooking with Alzheimer’s: Food, Family & the Nontraditional

A French writer once said that “a recipe has a hidden side, like the moon.” In every recipe there’s a little something that makes it special, and, hopefully, better. – Paula Wolfert The symptoms of dementia can vary greatly from person to person. In Paula’s case, it was her response to a simple request that acted as an early warning sign. One day her husband Bill asked her to make an omelet and her reply […]

Oct 302014
In Their Own Words

In April 2013, Vern Gillmore was diagnosed with early-stage Alzheimer’s disease. When Vern first started to experience the warning signs, he was not prepared to hear the words “Alzheimer’s disease.” Today Vern and his wife and care partner Karen are working together to educate others about the disease while facing their daily challenges head-on. They are just one couple whose story shows the power of love and teamwork during National Alzheimer’s Disease Awareness Month. In […] main site  |  Research  |  Advocacy  |  Care and support  |  Message boards  |  Disclaimer  |  Donate  |  Contact us  |  Sign up for e-news
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