Sep 282015
We Are In This Together

Four years ago, Mom quit her job so that she could come help me with my twin boys after they were born. I was an exhausted first-time mom who had no clue what I was doing. It was a huge relief to have her by my side during that time. I started to notice little things about Mom that were different; rather than read too much into anything, I figured that we were both just […]

Jul 062015
Be the Change You Wish to See in the World

Five years ago, after being diagnosed with Alzheimer’s, my mom Sonia moved from Chicago to Missouri. She lived with my brother for a month and then with my sister for about a week. It was soon obvious that I had to take over the responsibility of being her primary caregiver. We were always inseparable, but now we are more inseparable than ever. Due to a very long history of Alzheimer’s in my family, I was […]

Jun 212015
Hope in the Future and Beauty in the Moment

“There is hope in the future and beauty in the moment.” The Longest Day has afforded us the promise of this statement. When my incredible husband Steve was diagnosed nearly four years ago with younger-onset (also known as early-onset) Alzheimer’s, we knew we needed guidance. The Alzheimer’s Association has provided us with that and more. The Longest Day gave us an opportunity to take an active role. It also provided us with a chance to […]

Jun 212015
Crossing Bridges and Playing Bridge on The Longest Day

Good morning! Today is an important and exciting day in the making. This morning, members of the San Diego Harley Owners Group (H.O.G.) chapter are joining members of the San Diego Bridge Academy and Redwood Bridge Club in the fight against Alzheimer’s.  The American Contract Bridge League (ACBL) leads the fundraising to benefit the Alzheimer’s Association on The Longest Day, along with raffles, a fine art silent auction and an appearance by Chopper the Biker […]

Jun 022015
Swim for Jim: A Granddaughter’s Fight

My name is Grace, and I am 15 years old. For nearly 10 years of my life, my mother was a caregiver for her two aging parents. My grandmother was broken physically, but my grandfather Jim slowly deteriorated due to Alzheimer’s disease, passing in February of 2014. Watching my grandfather lose his identity was one of the hardest situations my family has ever had to cope with. I live with images of how this incurable […]

May 142015
Mother and Child

When I presented Mom with her birthday present, I couldn’t get my phone to record her reaction. The present was a big frame with eight photos of our family, and she loved it. So, what did I do? I took back the present, waited about 10 minutes, and gave it to her again. This time I filmed it—the same, wondrous reaction to seeing all her loved ones is now recorded. I’m both amused and horrified […]

May 072015
Remember Me, An Excerpt from Chicken Soup for the Soul: Living With Alzheimer’s & Other Dementias

The purpose of life is a life of purpose. ~Attributed to both Ludwig Wittgenstein and Robert Byrne I was a nurse for thirty years. Near the end of my career, I began to notice that I was struggling to complete daily tasks. There was always an excuse; I was tired or had worked too many hours. I began having trouble with my knee and took time off work to have surgery. It was during this time […]

Feb 132015
Bringing Awareness and Support to the Court: University of Maryland Basketball Coach’s Wife on Why She’s Fighting to End Alzheimer’s

Mark’s basketball career has spanned the entirety of our 20-year marriage. We have moved a lot – experiencing an ever-changing landscape of varying cities, schools, friends and basketball seasons, with invariable ups and downs. My role in Mark’s career has always been to find stability in these times of change, drawing from my relationship with my family. Some changes, however, are harder to face than others. Nearly nine years ago, my father died of younger-onset […]

Feb 052015
Cooking with Alzheimer’s: Food, Family & the Nontraditional

A French writer once said that “a recipe has a hidden side, like the moon.” In every recipe there’s a little something that makes it special, and, hopefully, better. – Paula Wolfert The symptoms of dementia can vary greatly from person to person. In Paula’s case, it was her response to a simple request that acted as an early warning sign. One day her husband Bill asked her to make an omelet and her reply […]

Nov 212014
Still My Grammy, An Excerpt from Chicken Soup for the Soul: Living With Alzheimer’s & Other Dementias

Grandma always made you feel she had been waiting to see just you all day and now the day was complete. ~Marcy DeMaree My grandmother was diagnosed with the early stages of Alzheimer’s disease when I was in fifth grade. At that point in my life, I was a kid. I was selfish as all kids are, so I didn’t think twice about it. I had no idea how it would eventually affect my life, as […] main site  |  Research  |  Advocacy  |  Care and support  |  Message boards  |  Disclaimer  |  Donate  |  Contact us  |  Sign up for e-news
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