Nov 142016
 
Finding Joy in the Face of Alzheimer’s: Richard Lui Talks Family & Long-Distance Caregiving

We sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. Every week, Richard travels coast-to-coast to be with his family. Tell us about your father Steven’s Alzheimer’s diagnosis and how it came about. It began with a diagnosis of dementia. The interesting part is my Dad never had a great memory – it was something we joked about. However, what […]

Nov 102016
 
Walking for the First Survivor of Alzheimer’s

2016 marks the 5th year I have walked in Walk to End Alzheimer’s. This year, I was lucky to walk with friends and family, but there is one person I wish could walk with me – and I simultaneously realize that if she was here, I wouldn’t have the same compelling reason to walk. That person is my mom. When I was 15, my mom was diagnosed with early-onset Alzheimer’s at the age of 50. […]

Oct 212016
 
The Hardest Goodbye: A Granddaughter’s Story

I was 15 years old when I found out my grandmother was diagnosed with Alzheimer’s disease. I had heard of it. I knew about it from friends who had grandparents who suffered through it (and I’d seen The Notebook a million times), but nothing can ever prepare you for what comes after the diagnosis. I tried to convince myself over and over that she would suffer less because there would come a point that she […]

Oct 132016
 
My Mother’s Fight Continues Through Me

When my mother was diagnosed with Alzheimer’s disease, I was a healthcare professional working in assisted living. I didn’t have much personal experience with dementia or first-hand knowledge of what it would be like to walk with someone on this journey. Suddenly, it became my mother’s journey and, eventually, my story as well. My sisters and I bought every book we could find about this terrible disease. “You read these three, I’ll read these four.” […]

Sep 292016
 
Our Most Precious Moments

The memories of our grandmothers – and the urgent need to protect our own parents from this disease – propelled our family to join the Alzheimer’s Association in Walk to End Alzheimer’s. We walk because it is our greatest hope that, in the near future, no one else will have to experience this disease the way our family has. Our family grew up on Staten Island, New York. Surrounded by grandparents, aunts, uncles and cousins, […]

Sep 092016
 
We Must Walk

My mother Marilyn was diagnosed with Alzheimer’s in her late 60s, but I recognized that something was wrong in her mid-60s. She had been displaying signs of nervousness and was more forgetful than usual. She had always been a very outgoing and confident woman who dressed very fashionably. One day I noticed that her skirt hem was hanging and that she wasn’t taking the same care in her appearance. My mother succumbed to Alzheimer’s disease one year […]

Sep 012016
 
Every Step Is a Step that Matters

I’ve been a proud team captain for Walk to End Alzheimer’s for five years. I walk for all those living with Alzheimer’s, including myself. I started having trouble with my memory in my 40s. I worked in a doctor’s office as a nurse and suddenly I forgot how to calculate inches to feet in height. Then, I couldn’t remember what shots were given at what age. Eventually, I forgot how to spell the doctor’s name. […]

Sep 012016
 
Waking Up to Sunshine

Family, fitness and faith are all at the center of my being. I was a caregiver for 13 years for two of the most important men in my life – my fathers. Like many caregivers, I experienced the joy and heartbreak of caring for my parents. It was a journey that sometimes made me laugh and sometimes made me cry. When my father was diagnosed with dementia after suffering from two strokes, I was concerned […]

Jun 292016
 
A Passion for Compassion

Nikki Dodson is care partner for her husband Ken who has younger-onset Alzheimer’s disease. They are both 37 years old. We spoke to them about their reality of being a young family with a very unique story and a huge passion for ending Alzheimer’s. Nikki Ken received his Alzheimer’s diagnosis a week before his 30th birthday. Needless to say, it was a very difficult time. Even gaining access to some Alzheimer’s informative resources has been […]

Jun 202016
 
Mile High Memories

Today, on The Longest Day, my husband and I will wake up early to hike Mount Evans in Colorado with our team of friends, the Mile High Memory Club. It’s our third year participating in The Longest Day, a sunrise-to-sunset event that symbolizes the challenging journey of those living with the disease and their caregivers. This will be our second year hiking a Colorado 14’er (elevation: 14,265’) to honor someone we love very much who is living with Alzheimer’s […]

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