Jan 212016
 
Zing

“Was I there, too?” Mom asks as my dad tells us about a concert they attended Monday night. “Of course,” he responds. “I don’t remember,” Mom replies. “I don’t even know if I’m here or there.” We laugh, because in context, it’s funny. What it means, however, is that Mom is aware of her memory loss, of her dislocation from time, of her inability to live beyond the moment. We’ve accepted this about her. And […]

Jan 122016
 
Dear Healthcare Professional Taking Care of My Mom with Alzheimer's

Let me start by simply saying thank you! Thank you for your tireless work in the medical field. You may be prescribing or handing her medication, and checking for side effects. Maybe you are the nurse’s aide who helps her get dressed in the morning and reminds her where the dining room is. Are you the social worker who takes my concerned calls? Or the lab technician who draws her routine blood work? Maybe you […]

Dec 092015
 
Light the Darkness that is Alzheimer's

“I don’t know if I’m lost or not,” Mom said as walked in the city. We were holding hands, the sun gracing us with warmth, the sheltering sky bright and blue. I keep wondering what it’s like to feel that everything around you lacks substance, that what you knew a minute ago is now no longer familiar. What happens when your depth perception goes, and the general hubbub of the city becomes not just loud, […]

Nov 182015
 
A Family Affair

It’s a lot easier to say change isn’t easy than it is to experience change yourself.  I recently found this out firsthand when I said goodbye to friends, residents and coworkers at Brookdale Hillsborough, where I served as the Clare Bridge program manager for two years. In becoming the new executive director at Brookdale Hamilton, I wouldn’t be far away geographically, but away from the “family” I had grown to love. Clare Bridge is Brookdale’s […]

Oct 272015
 
My Care Partner Is My Hero

I first met my now-wife Shannon at work. I was her supervisor, and since she knew the responsibilities of the department inside and out, I leaned on her for assistance. We started to get to know each other on a more personal level and then we started dating. She asked me out – I had no idea she liked me in that way! After dating for some time, she took me to Disney World and […]

Oct 272015
 
A Note to Caregivers from Dan Gasby

Two years ago, when B. got her diagnosis, I made the same assumption that almost all newcomers to this challenging subject do. I thought it was all about the loved one who now had Alzheimer’s. She was the patient — or maybe the word I used more often was “victim.” She was, and she is. But the challenge, I came to see, was just as formidable for me as it was for her. I don’t […]

Oct 222015
 
10 Life Lessons My Mother Continues to Teach Me as She Lives with Alzheimer’s

1. Things that seem so important to us in our everyday lives just are not. Mom thought it was important that she follow the strict rules of her religion. She had to wear a skirt every day, as well as have her long hair in a bun. Mom never ever wore jewelry and rarely watched TV. Guess what? The aides put her hair in a ponytail, and she wears the Mardi Gras beads that she […]

Sep 282015
 
We Are In This Together

Four years ago, Mom quit her job so that she could come help me with my twin boys after they were born. I was an exhausted first-time mom who had no clue what I was doing. It was a huge relief to have her by my side during that time. I started to notice little things about Mom that were different; rather than read too much into anything, I figured that we were both just […]

Jul 062015
 
Be the Change You Wish to See in the World

Five years ago, after being diagnosed with Alzheimer’s, my mom Sonia moved from Chicago to Missouri. She lived with my brother for a month and then with my sister for about a week. It was soon obvious that I had to take over the responsibility of being her primary caregiver. We were always inseparable, but now we are more inseparable than ever. Due to a very long history of Alzheimer’s in my family, I was […]

Jun 212015
 
Hope in the Future and Beauty in the Moment

“There is hope in the future and beauty in the moment.” The Longest Day has afforded us the promise of this statement. When my incredible husband Steve was diagnosed nearly four years ago with younger-onset (also known as early-onset) Alzheimer’s, we knew we needed guidance. The Alzheimer’s Association has provided us with that and more. The Longest Day gave us an opportunity to take an active role. It also provided us with a chance to […]

Alz.org main site  |  Research  |  Advocacy  |  Care and support  |  Message boards  |  Disclaimer  |  Donate  |  Contact us  |  Sign up for e-news
© 2011 Alzheimer's Association | Blog Suffusion theme by Sayontan Sinha