May 162017
 

The Longest Day is all about love! On the summer solstice, people select any activity they love — or an activity loved by those affected by Alzheimer’s disease — to help raise funds and awareness to help end Alzheimer’s.

Two sisters from Decorah, Iowa are fighting to end Alzheimer’s  on behalf of their father Dale, who was diagnosed with early-onset Alzheimer’s at age 57. Most of Brecka and Shanna’s The Longest Day teammates are honoring or remembering someone special to them, as all of them have been affected by Alzheimer’s disease in one way or another. Although the sisters know that there won’t be a cure in their dad’s lifetime, they are fighting to make sure that there is a cure in theirs!

Joining the fight

“Dad is an avid cyclist and I have always enjoyed riding with him and his friends. The Longest Day allows us to do something he loves while honoring him and raising funds to take down Alzheimer’s – what could be better?!” says Shanna.

“We don’t do anything less than 100%, so we loved the freedom to go as big as our dreams by picking a meaningful activity and a time that works with our schedules,” Brecka says on The Longest Day event’s flexibility.


Preparing for the day-of

The sisters had an easy time choosing the activity of cycling. “Dad once completed a triple century (300 miles!) in a single day. He also was one of the leaders in a fundraising project aiming to extend a local bike trail,” says Brecka beams. “It only seems fitting to start the event on the piece of the trail he helped to make possible. We’re also encouraging out-of-towners to ride in their own cities; people who don’t bike can get involved by walking or jogging!”

Shanna knows that planning is key to their event’s success. “We have been reaching out to everyone we know to join in the fight.  We have gotten a lot of community and business support and hope to do other mini-fundraisers to help us reach our fundraising goal.

“The day-of is going to be EPIC.  We are planning an hour for both kids and teens and businesses are taking an hour to honor and remember those impacted by Alzheimer’s. We also have a pretty fantastic after party planned. It will cap off 24 hours of kicking Alzheimer’s in the butt!”


Their longest days

Despite all of their excitement about the day itself, it has been a rough road for both sisters and their family. Brecka experienced her longest moments in the space between when she found out her dad had Alzheimer’s and in supporting him as he told her other sisters of his diagnosis. “Not being able to “fix it” was a terrible feeling,” she says.

For Shanna, there have been so many heart-wrenching moments. “The hardest part is seeing my dad decline, because he knows that he is declining.  My little sister is still in high school and could lose Dad before she graduates – that is one of the worst parts. And finally, knowing that my kids, ages 3 yearsand 3months, have very limited time with their grandpa…it just breaks my heart.”

Both sisters agree – being able to take control of their activity and plans for The Longest Day is empowering and helps them feel like part of the fight to end Alzheimer’s. It is a way for them to leave their mark and honor their father and his legacy. “Finding a cure has to become everyone’s business, or it’s going to become everyone’s big problem really soon,” says Brecka.

In it together

The sisters aren’t slowing down, because they know that no one can fight this disease alone. “As the population ages, and advances in medicine help people live longer, a greater percentage of people will have Alzheimer’s or other dementias. Our country doesn’t have the infrastructure or resources to care for the number of people who will have dementia – but otherwise be reasonably healthy – in the years to come. We won’t be able to cover the costs: physically, financially or emotionally. We have to find a cure,” says Brecka.

Shanna admits that she learned about Alzheimer’s the hard way: by seeing her dad’s fight. “I am embarrassed to admit I had a lot of misconceptions about Alzheimer’s before Dad was diagnosed.  I didn’t realize how young it can hit, and how great of an impact it has on the person diagnosed, not to mention friends and family.  It is a heartbreaking disease, and sadly it is one that will impact us all.”

Making sour moments sweeter

Shanna and Brecka’s team has raised $4,517 to date, but their goal is $24,000 – $1,000 for each hour in the day. “We started by creating a presence on social media and have been regularly sharing a lot of video content,” says Brecka.

“We’re in the early phases of getting support from local businesses and schools and have several businesses lined up to hold their own fundraisers for the event. We’re well on our way!” adds Shanna.

“There is a quote from one of my favorite television shows, “This is Us,” that has inspired me along our fundraising journey,” says Shanna. “A character said: ‘There’s no lemon so sour that you can’t make something resembling lemonade.’

“Our dad’s diagnosis was one of life’s most sour lemons. Finding a cure…now that’s our lemonade.”

About Shanna and Brecka: The sisters joined The Longest Day as team Trails for Dale to celebrate and honor their dad, Dale Putnam, who was diagnosed with early-onset Alzheimer’s disease. Although there is no cure for him, or anyone fighting Alzheimer’s today, he’s an active participant in Alzheimer’s clinical trials in hopes that one day there will be a cure for someone else. Shanna and Brecka want to help make his dream a reality.  Visit their team page here.

 

 

  14 Responses to “Cycling the Distance for Dad on The Longest Day”

  1. Thanks for all your efforts, Shannon and Brecka! Keep up the great work and I hope that you are able to reach your goal!

  2. I am a Volunteer in a German evaluation and research group in the Gerontologie at the UNI-HeidelbergGermany discussing old age, ECHO DER GENERATIONEN. We just discussed today how to recognize Alzheimer desaese. I would like to recomment a film of our German TV Station ARD. Please have a look:
    http://mediathek.daserste.de/Filme-im-Ersten/F%C3… Best Regards Gerhard

  3. Just lost my dear brother-in-law Carl on May 9th to this incredibly heartbreaking disease. Good luck to you both!

  4. god bless them all remember cbd can help prevent

  5. You are both an amazing inspiration to many, especially your dad. He must be so proud! Good luck in your endeavors. We all need to work for a cure, suppport research and end this wicked disease. Too many of us are touched by it. Bless you both!

  6. It’s great that your doing this your dad. My mom died of Althiemers a few years ago and I remember how hard it is. Good luck to your dad. Keep on biking

    Regards,

    Jeff Houston

  7. I just got home from visiting my sister who is now in a long term care facility. She, too, was diagnosed with early onset Alzheimer's when she was 57. She is now 66 and no longer knows who I am but, most visits, she gets a big smile on her face when she sees me so, at least, I believe she knows I am someone who loves her. Girls, I know how hard this journey is and I am not going to pretend it isn't going to get harder but I can tell you what you are doing to honor your father is something you and your family will always be so glad you did. There's no mention in the article where your father is now as far as the disease progression but i pray you will stay strong for him, for each other and for your family. God bless you and your father. Hope to hear more about your journey.

  8. Hi Shannon and Breck, my mom had Alzheimer’s. She was and is still is everything to me. I will definitely do some cycling and I plan on joining the Alz.org walk here in CT in September. My mom had lots of grandchildren. I will grab them and get them to join in on the walk and try hard to raise money for Alzheimer’s. Thank you for all you are doing and take care of Dad!

  9. Good luck and Bless you for honoring your Father with this ride! <3

  10. Thank you so muchmy husband has Alzheimer’s

    We are both retired and I need one on one care for him.

    He cannot be left alone. He wears a medical guardian device which

    Has a GPS SYSTEM which can be used throughout the USA.

    I AM filling out long term care applications. It is only a matter of time

    Before he will has to be placed. My father had Alzheimer’s

    And died at 70. As we drove him to a long term facility

    My mother said “I can’t believe I cannot take care of my husband.

    Words that I am now living. Pray for all of us.

  11. This is a nice thing you all are doing. My father had early onset Alzheimer's as well. Hugs to your family!

  12. Team Uffda in Omaha is supporting you! We lost our dad/grandpa to Alzheimer's 5 years ago. He too was an avid cyclist, we rode RAGBRAI many times as a family. Nothing made him happier than riding as stoker on our tandem and having one last time to feel the wind in his face. Keep making your great memories every day!

  13. I lost my Mom to this heartbreaking disease and I hope to never get it. Good luck to you and I pray for a cure.

  14. Deirdre

    Good luck to you both. The lemonade analogy is so true! Lemonade a cure! Love it.

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