For Nana: Fighting to End Alzheimer’s One Music Note at a Time

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Jun 152018
 
For Nana: Fighting to End Alzheimer’s One Music Note at a Time

Tonight, on June 21, 2018, my team is hosting our first-ever benefit concert and cocktail hour for The Longest Day. Tonight, we are making connections, not only with other people who have experienced the effects of Alzheimer’s disease, but connections to music and my Nana. We are here to help find a cure so that no one ever has to live through what she and I did. Growing up, my Nana and I were inseparable, […]

Today, I Carry Her: Cycling Through the Decades on The Longest Day

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Jun 152018
 
Today, I Carry Her: Cycling Through the Decades on The Longest Day

It has been more than a year since my grandmother was diagnosed with Alzheimer’s disease. This afternoon, my team is embarking on three hours of indoor cycling in her honor, and in honor of those they love. My grandmother is a woman who has been through more than any one person should have to endure in a lifetime. She survived her husband’s death after caring for him during his ten-year battle with cancer; she has survived the […]

Thinking of Mom on The Longest Day: 1,500,000 Steps Across Scotland

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Jun 152018
 
Thinking of Mom on The Longest Day: 1,500,000 Steps Across Scotland

This morning, as I prepare for my day in my tent in Northern Scotland, I am thinking about how, for people caring for loved ones living with Alzheimer’s and dementia, every day seems like the longest day. That is why I am doing something I love for someone I love. I’ve lived through it myself – and I want to support all the caregivers and care partners who take this journey together. Today, and for […]

Playing Bridge and Raising Funds to End Alzheimer’s

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Jun 072018
 
Playing Bridge and Raising Funds to End Alzheimer's

We spoke with bridge club owner and American Contract Bridge League (ACBL) accredited teacher Silvana Scotto Morici about her involvement in the Alzheimer’s Association event The Longest Day. Read on to learn why bridge players come back year after year to raise funds and awareness for Alzheimer’s disease. Tell us how you got involved with bridge and why you made the game your activity for The Longest Day. I got into bridge completely by accident. […]

Amy Aquino is Getting Her Hands Purple (Again!) for The Longest Day

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May 022018
 
Amy Aquino is Getting Her Hands Purple (Again!) for The Longest Day

“The Longest Day 2017 was truly one of the most memorable days of my life.” Actress Amy Aquino, currently starring as Lt. Grace Billets on the Amazon series “Bosch,” is known for equally tough-as-nails characters she has brought to life on “ER,” “Being Human” and “Felicity.” She recently spoke with us about her deep familial connection to Alzheimer’s disease and how the color purple has inspired her participation in the Alzheimer’s Association’s fundraising event, The […]

A Mind Once Sharp and Full

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Mar 082018
 
A Mind Once Sharp and Full

Lead singer Patrick Miranda of the alternative rock band Movements is familiar with Alzheimer’s disease in more ways than one. As a child, he saw the disease in his own family. More recently, he has seen how the disease has impacted the family of his girlfriend. We sat down to talk with Patrick about how his experiences and the lack of conversation about Alzheimer’s and dementia in the music community led him to write “Deadly […]

You Will Get Wet on This Ride

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Feb 222018
 
You Will Get Wet on This Ride

I washed Mom’s hair today. What a mess! For some reason, Mom, like many people living with Alzheimer’s, does not enjoy bathing or showering. Perhaps it is the overwhelming number of tasks associated with morning rituals that someone with Alzheimer’s can no longer remember how to do or what order to proceed in. I imagine Mom has a blank space in her memory when she’s asked to wash. And not being able to do it […]

Rewriting Memories: Film Veteran Lois Smith Creates Oscar Buzz with “Marjorie Prime”

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Jan 022018
 
Rewriting Memories: Film Veteran Lois Smith Creates Oscar Buzz with “Marjorie Prime”

Actress Lois Smith’s face is one film buffs instantly recognize. Whether it’s a standout performance in a television series (“The Americans,” “True Blood”) or a memorable turn in a major motion picture (“Minority Report,” “Twister,” “East of Eden”), hers is a talent that has endured over six decades. But one wouldn’t guess that Smith recently celebrated her 87th birthday, or that she would post her first tweet that same day. She keeps people on their […]

At a Crossroads During Chanukah

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Dec 152017
 
At a Crossroads During Chanukah

We are at a crossroads. Should we give Mom anti-psychotic medication to combat her hostility and irrational behavior (i.e., hallucinations, delusions, aggression, agitation), thereby knowingly accepting possible side effects of these drugs? Or should we continue to shepherd Mom through her heartbreaking performances and embrace her anger? Mom is regressing into a world of incoherence and fantasy. She experiences what my dad calls psychotic episodes between periods of greater clarity with lack of cognition and […]

Accepting the New You During the Holidays – and Beyond

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Dec 152017
 
Accepting the New You During the Holidays – and Beyond

Every Christmas, it’s my family’s tradition to make homemade tamales! We make pork, chicken and raisin, usually 12 to 15 dozen. Christmas Eve dinner always includes these specialties, and then our extended family takes some home for Christmas morning. I love everything about this time of year, from our family get-togethers to knitting gifts and watching all of my favorite Christmas movies. Although we plan to continue these traditions together, I will be resting more […]

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