Jul 062015
 
Be the Change You Wish to See in the World

Five years ago, after being diagnosed with Alzheimer’s, my mom Sonia moved from Chicago to Missouri. She lived with my brother for a month and then with my sister for about a week. It was soon obvious that I had to take over the responsibility of being her primary caregiver. We were always inseparable, but now we are more inseparable than ever. Due to a very long history of Alzheimer’s in my family, I was […]

Jun 262015
 
I Am More than My Diagnosis

Tim, diagnosed with Frontotemporal dementia in 2012, living with HIV Working in information technology and then for many years as a part of a management team, my career was very important to me. At the end of 2009, however, I realized that I was having trouble focusing on my job, and one day after a lunchtime walk, I felt like I had lost sight in one of my eyes. Thinking it was due to stress, […]

Jun 232015
 
Stories My Grandfather Told Me

I am sitting at a dinner party in Deauville, France, listening to my grandfather recount stories I’ve heard him tell a thousand times before; times spent with Peter O’Toole in the desert, his love affair with Barbra Streisand and with other leading ladies, past exploits at card tables and racetracks. But this night is different. The stories are off; rich details normally embedded like fine jewels are missing. The characters are colorless and the anecdotes lack grounding in space and time – […]

Jun 022015
 
Swim for Jim: A Granddaughter’s Fight

My name is Grace, and I am 15 years old. For nearly 10 years of my life, my mother was a caregiver for her two aging parents. My grandmother was broken physically, but my grandfather Jim slowly deteriorated due to Alzheimer’s disease, passing in February of 2014. Watching my grandfather lose his identity was one of the hardest situations my family has ever had to cope with. I live with images of how this incurable […]

May 142015
 
Mother and Child

When I presented Mom with her birthday present, I couldn’t get my phone to record her reaction. The present was a big frame with eight photos of our family, and she loved it. So, what did I do? I took back the present, waited about 10 minutes, and gave it to her again. This time I filmed it—the same, wondrous reaction to seeing all her loved ones is now recorded. I’m both amused and horrified […]

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