Jun 262015
 
I Am More than My Diagnosis

Tim, diagnosed with Frontotemporal dementia in 2012, living with HIV Working in information technology and then for many years as a part of a management team, my career was very important to me. At the end of 2009, however, I realized that I was having trouble focusing on my job, and one day after a lunchtime walk, I felt like I had lost sight in one of my eyes. Thinking it was due to stress, […]

Jun 232015
 
Stories My Grandfather Told Me

I am sitting at a dinner party in Deauville, France, listening to my grandfather recount stories I’ve heard him tell a thousand times before; times spent with Peter O’Toole in the desert, his love affair with Barbra Streisand and with other leading ladies, past exploits at card tables and racetracks. But this night is different. The stories are off; rich details normally embedded like fine jewels are missing. The characters are colorless and the anecdotes lack grounding in space and time – […]

Jun 212015
 
Hope in the Future and Beauty in the Moment

“There is hope in the future and beauty in the moment.” The Longest Day has afforded us the promise of this statement. When my incredible husband Steve was diagnosed nearly four years ago with younger-onset (also known as early-onset) Alzheimer’s, we knew we needed guidance. The Alzheimer’s Association has provided us with that and more. The Longest Day gave us an opportunity to take an active role. It also provided us with a chance to […]

Jun 022015
 
Swim for Jim: A Granddaughter’s Fight

My name is Grace, and I am 15 years old. For nearly 10 years of my life, my mother was a caregiver for her two aging parents. My grandmother was broken physically, but my grandfather Jim slowly deteriorated due to Alzheimer’s disease, passing in February of 2014. Watching my grandfather lose his identity was one of the hardest situations my family has ever had to cope with. I live with images of how this incurable […]

May 142015
 
Mother and Child

When I presented Mom with her birthday present, I couldn’t get my phone to record her reaction. The present was a big frame with eight photos of our family, and she loved it. So, what did I do? I took back the present, waited about 10 minutes, and gave it to her again. This time I filmed it—the same, wondrous reaction to seeing all her loved ones is now recorded. I’m both amused and horrified […]

May 072015
 
Remember Me, An Excerpt from Chicken Soup for the Soul: Living With Alzheimer’s & Other Dementias

The purpose of life is a life of purpose. ~Attributed to both Ludwig Wittgenstein and Robert Byrne I was a nurse for thirty years. Near the end of my career, I began to notice that I was struggling to complete daily tasks. There was always an excuse; I was tired or had worked too many hours. I began having trouble with my knee and took time off work to have surgery. It was during this time […]

Feb 132015
 
Bringing Awareness and Support to the Court: University of Maryland Basketball Coach’s Wife on Why She’s Fighting to End Alzheimer’s

Mark’s basketball career has spanned the entirety of our 20-year marriage. We have moved a lot – experiencing an ever-changing landscape of varying cities, schools, friends and basketball seasons, with invariable ups and downs. My role in Mark’s career has always been to find stability in these times of change, drawing from my relationship with my family. Some changes, however, are harder to face than others. Nearly nine years ago, my father died of younger-onset […]

Feb 052015
 
Cooking with Alzheimer’s: Food, Family & the Nontraditional

A French writer once said that “a recipe has a hidden side, like the moon.” In every recipe there’s a little something that makes it special, and, hopefully, better. – Paula Wolfert The symptoms of dementia can vary greatly from person to person. In Paula’s case, it was her response to a simple request that acted as an early warning sign. One day her husband Bill asked her to make an omelet and her reply […]

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