Nov 172016
 
Why I Walk: William’s Story

My experience with Alzheimer’s started in 2001. My grandfather (my father’s father) died of what was first described to me as senility. I was in my early 20s and thought nothing of it; people in their 80s just forgot things. It was not until 2009 or 2010 that I started to pay closer attention. We later discovered that my grandfather had had dementia. That’s when I also learned that my grandparents on my mother’s side […]

Nov 142016
 
Relief for Thousands Living with Alzheimer’s Disease

Today, there are an estimated 5.4 million Americans living with Alzheimer’s disease. And while most people associate the disease with old age, the fact is there are 200,000 Americans under the age of 65 living with it today. As with all forms of the disease, early-onset Alzheimer’s is a progressive, terminal disease, which cannot be prevented, cured or even slowed. Since the onset can occur in people as early as in their 30s and 40s […]

Nov 102016
 
Walking for the First Survivor of Alzheimer’s

2016 marks the 5th year I have walked in Walk to End Alzheimer’s. This year, I was lucky to walk with friends and family, but there is one person I wish could walk with me – and I simultaneously realize that if she was here, I wouldn’t have the same compelling reason to walk. That person is my mom. When I was 15, my mom was diagnosed with early-onset Alzheimer’s at the age of 50. […]

Oct 202016
 
Thank You for Loving Me

In 2015, I was diagnosed with younger-onset Alzheimer’s disease. My father, 85, and the youngest of 10, is living with Alzheimer’s, as well as one of his brothers. Their father also had the disease. Still fresh in my mind is an early incident at my grandparent’s home. My grandmother was trying to tell my grandfather where the closet was so that he could hang his coat, as he had done so many times before. He […]

Oct 132016
 
My Mother’s Fight Continues Through Me

When my mother was diagnosed with Alzheimer’s disease, I was a healthcare professional working in assisted living. I didn’t have much personal experience with dementia or first-hand knowledge of what it would be like to walk with someone on this journey. Suddenly, it became my mother’s journey and, eventually, my story as well. My sisters and I bought every book we could find about this terrible disease. “You read these three, I’ll read these four.” […]

Oct 072016
 
Trying to Get an Alzheimer’s Question in the Presidential Town Hall Debate

“We have a great opportunity,” said Ruth Gay, our chapter’s chief public policy officer, reaching me at San Francisco International Airport early on September 29 as I was about to board a flight to New York.  “It’s a real long shot,” she explained, “but as an AIM member and volunteer advocate, would you like an opportunity to ask a question about Alzheimer’s disease at the next presidential debate?” “Absolutely!” I replied, “What do you need […]

Sep 292016
 
Our Most Precious Moments

The memories of our grandmothers – and the urgent need to protect our own parents from this disease – propelled our family to join the Alzheimer’s Association in Walk to End Alzheimer’s. We walk because it is our greatest hope that, in the near future, no one else will have to experience this disease the way our family has. Our family grew up on Staten Island, New York. Surrounded by grandparents, aunts, uncles and cousins, […]

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