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  1. My Mom has been diagnosed with advanced Alzheimers and is bed bound. Yet in the past 2 months, she seems to have better cognition, eg occasionaly recognizing someone, and wanting to get out of bed, something that heretofore she has shown little desire to do. All in all she seems a bit perkier than the past 6 months. Any insights?

  2. I would have love to be a part of the longest day!!!! However today is June 18, 2014 and I just got this e-mail today, the event is June 21, 2014! I am sad, this small amount of time will NOT give me time to get a group together.. Please send event notices at least 2 weeks in advance. Thanks!

    • Hi, Linda. I believe you are subscribed to blogs, but not notifications for The Longest Day. You can still sign-up here: http://www.alz.org/tld in order to make sure you receive a notification about next year's event, which is always on June 21.

  3. Hello Alzheimers association,

    I am a Toronto based filmmaker and am the writer and producer of the project Momemo, a short film about alzheimer. Having a grandparent with the disease, I wrote this film as a way to bring insight into the lives of alzheimer patients. We are currently fundraising for the project, and could use all the support we get.

    If you feel it is a worthy project, we would love help spreading the word. We have a short campaign window, but our project is here at https://www.kickstarter.com/projects/1592548999/m… . Thank you so so much.

    Cheers

  4. What is the best way to handle violent behavior?

    • In my personal experience, the relationship status between you and the person showing violent tendencies plays a big role on your approach to calm the person down. For example if it's a father/daughter relationship and the person with Alzheimer's is the father, you can try to use the daughter role to your advantage. The parent tends to have a certain level of trust with their child, and that is vital to the patient/parent when being cared for. As I'm trying to point out, the patient tends to be better with their child then, say their partner. This suggestion is basically using a middle-man, which can help at times but also may not. I can't say for sure this kind of situation and solution would work out since I don't know the person… Another thing that is vital to patients of Alzheimer's is that they WANT to be understood, but (sometimes) realize they CAN'T be understood. This is often what causes the agitation and violent behaviors because they just want their point to be understood. So it can sometimes help to approach the agitated person with a calm and soothing attitude. This shows them that everything is fine and will be fine while you try to decipher what they are trying to do. If the soft approach isn't/doesn't work, distractions work also. Try to bring their mind to something else. Something they cherish and have fond memories of, this tends to bring about a start of old stories you most likely have heard many times, but the person will hopefully lose themselves in the memories and forget what they are even agitated about. Besides these solutions, there are the medical solutions(medication), which I can't and won't go further into. But using a combo of these ideas can work along with the fact that you already know things about this person (and maybe to the point you can think along the same lines as them at times), these methods should be able to bring about results.
      ~ I hope this helps (somehow). I feel I'm not doing enough, but this is really all I can think of that will help you and I also just don't know the full situation, so this is all I have. I'll stop blabbering now…

      • _Blabber away! That was the first post I've read on blog.alz and it was fresh air. Helped a lot, since I've been working these manipulations of focus without thinking of them as deliberate strategies, like out of nowhere beginning a story or asking a question about the Old Days if he's super upset – one that hits on that old familiar pattern of memories, of a happier, favorite time and place. It's a brain-twisting thing to do repeatedly for Yourself since you develop a memory of those stories as if they were your own memories, but it's a lot better than the stress of being screamed at or worse. I spend a lot of time in the early 1950s, for example! (Thank goodness his childhood could've been a prequel to Walton's Mountain (something that once annoyed me a little out of envy) – and now, his Saving Grace, those sweet memories.
        Consider how incontrovertably, this one thing shows how vastly important it is to be supportive and positive around children – even very small children! Those memories are with all of us, every day in a way that's so much more influential than I'd have ever been able to grasp without having found this to be true, courtesy of AD.

  5. Hubby has been progressing through Alz stages for over 14 years. Still living with me at home. Entering late stage. Recently has hallucinations (I presume) of seeing words on EVERYTHING. He sits and continually "reads" words on the blanket, wall, his pant leg, even outdoors he sees words. I find that the words he is reading are very related to things he might be thinking but usually end up with someone wanting to kill him – or alternatively, he thinks I wrote them! I work full time so our time is together after work and weekends. It used to be enjoyable time but has become unpleasant with the constant reading/paranoia, etc. Ideas, suggestions, experience with such. Interested to hear from others who have first hand experience with this.

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