Jul 052017
 
An Education: Professor Charles Ogletree Speaks Truths about Alzheimer’s

Charles James Ogletree, Jr. is the Jesse Climenko Professor at Harvard Law School and the founder of the school’s Charles Hamilton Houston Institute. With prolific former students such as Michelle Obama and trials under his belt for Tupac Shakur and Anita Hill, Professor Ogletree has fought for decades for justice and civil rights. He is also living with Alzheimer’s disease, having disclosed his diagnosis in July 2016. We spoke to him about his experiences and his […]

Jun 272017
 
Maintaining Independence in the Face of Disease

On more than one occasion, when I was a young boy, my grandmother roamed the streets of Washington, D.C. at night. One night she was picked up by the police, and ultimately placed in a home with others “like her.” Back then, these types of events were attributed to old age and senility.  Today, my mother is living with Alzheimer’s disease – just like my aunt and grandmother. And at the age of 66, I […]

May 032017
 

The Alzheimer’s Impact Movement, the Alzheimer’s Association and our nationwide network of dedicated advocates are celebrating breaking news from Washington – federal research funding for Alzheimer’s at the National Institutes of Health (NIH) has received a $400 million increase in the FY2017 budget. We first shared with you the Senate Appropriations and House Appropriations Committee’s intent to once again pass an historic funding increase in the summer and today it was officially signed into law […]

Mar 152017
 
Amplify Your Advocacy Reach with New Social Media Tools

These days nearly every member of Congress is using Twitter, Facebook or Instagram on a regular basis. The era of congressional offices sending out press releases as the main way to convey the Member’s message is long gone. Now, both staff and members alike use social media to push information out immediately and interact with their constituents every single day. Because social media has become the main form of communication with most congressional offices, advocates […]

Feb 162017
 
Finding My Voice in the Fight to End Alzheimer’s: A Young Advocate’s Story

I am a hospice and palliative care nursing assistant for people living with Alzheimer’s disease. I have experienced countless moments of bathing and toileting people who have forgotten what toilet paper is, and countless minutes flipping through photo albums pointing out family members, picture by picture. Most importantly, I have countless special memories of holding someone’s hand as death washes over and a sort of freedom sets in. I have been someone’s doctor, someone’s granddaughter […]

Nov 142016
 
Relief for Thousands Living with Alzheimer’s Disease

Today, there are an estimated 5.4 million Americans living with Alzheimer’s disease. And while most people associate the disease with old age, the fact is there are 200,000 Americans under the age of 65 living with it today. As with all forms of the disease, early-onset Alzheimer’s is a progressive, terminal disease, which cannot be prevented, cured or even slowed. Since the onset can occur in people as early as in their 30s and 40s […]

Oct 072016
 
Trying to Get an Alzheimer’s Question in the Presidential Town Hall Debate

“We have a great opportunity,” said Ruth Gay, our chapter’s chief public policy officer, reaching me at San Francisco International Airport early on September 29 as I was about to board a flight to New York.  “It’s a real long shot,” she explained, “but as an AIM member and volunteer advocate, would you like an opportunity to ask a question about Alzheimer’s disease at the next presidential debate?” “Absolutely!” I replied, “What do you need […]

Aug 232016
 
NIH Releases Second Alzheimer’s Professional Judgment Budget

This summer has been filled with positive advancements towards increased federal Alzheimer’s research funding in the House and the Senate for FY17. And, in August, Alzheimer’s champions received another reason to celebrate when the National Institutes of Health (NIH) recommended a $414 million increase in spending on Alzheimer’s disease research above NIH’s base appropriation for Fiscal Year 2018. Were this provided next year on top of what Congress is on track to provide this year, that […]

Aug 232016
 
Without Action, Alzheimer’s Will Overwhelm Federal Budget by 2050 – Part III

This is the final piece of a three part series on the need to act decisively to address the Alzheimer’s crisis. Part one reviewed the fiscal imperative to address the Alzheimer’s crisis, while part two addressed the research needs and opportunities. THE PEOPLE’S IMPERATIVE The public is increasingly aware of the need for action. A nationwide survey the Alzheimer’s Association fielded in 2015 found that voters view Alzheimer’s disease as a significant priority. The survey […]

Aug 222016
 
Without Action, Alzheimer’s Will Overwhelm Federal Budget by 2050 – Part II

This is part two of a three-part series on the need to act decisively to address the Alzheimer’s crisis. Part one reviewed the fiscal imperative to address the Alzheimer’s crisis, while part three reveals public opinion on the need for government to act. The Research Imperative The federal government has taken several important steps in recent years to address this looming crisis. The National Alzheimer’s Project Act (NAPA), passed unanimously by Congress in December 2010 and […]

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