Oct 302014
 
In Their Own Words

In April 2013, Vern Gillmore was diagnosed with early-stage Alzheimer’s disease. When Vern first started to experience the warning signs, he was not prepared to hear the words “Alzheimer’s disease.” Today Vern and his wife and care partner Karen are working together to educate others about the disease while facing their daily challenges head-on. They are just one couple whose story shows the power of love and teamwork during National Alzheimer’s Disease Awareness Month. In [...]

Sep 182014
 
Walk to End Alzheimer’s® Team Led by Four-Year-Old Fundraiser

Everyone has a reason to end Alzheimer’s, including four-year-old Lilly Myers of Latrobe, Pennsylvania. Her great-grandmother or “Nanny,” Patty Lewis, 82, is one of the more than 5 million Americans living with the disease. To honor Nanny, Lilly is participating in the Alzheimer’s Association Walk to End Alzheimer’s® — the world’s largest event to raise funds and awareness for Alzheimer’s disease — in Carmichaels, Pennsylvania. But the preschooler isn’t just walking; she’s the top fundraiser [...]

Sep 112014
 
Alzheimer's Awareness Comes to The Meredith Vieira Show

Television talk show host and journalist Meredith Vieira launched “The Meredith Vieira Show” earlier this month. On the second episode of her nationally syndicated daytime show, Meredith committed to bringing awareness to Alzheimer’s disease and the cause by welcoming actor Seth Rogen and his wife Lauren Miller. They spoke about how the Alzheimer’s diagnosis of Lauren’s mom affected their lives and how they have created awareness for the cause through their fundraising event Hilarity for Charity. Other notable [...]

Jun 142014
 
Go Big or Go Home: Advocating for Dad

Father’s Day – or any day, for that matter – is not a typical day for Jason. Jason is a teenage caregiver. While many young adults of 18 are thinking about final exams and high school graduation parties, Jason Hatke’s mind is looking much further into the future. At age 46, Jason’s father Mike was diagnosed with younger-onset Alzheimer’s disease. Jason was only 13. There were signs in the years before Jason’s father was diagnosed. [...]

May 052014
 
Post-Advocacy Forum: An Advocate Reflects

In a record year for the Alzheimer’s Association Advocacy Forum, nearly 900 advocates gathered on Capitol Hill, compelling Congress to make Alzheimer’s disease a national priority. With representatives present from all 50 states, this event once again brought together those affected by Alzheimer’s and allowed them to share their stories, their passion and their personal challenges living with the disease. Chuck Warner was one of the 900 strong. From April 7-9, my wife Lisa and [...]

Apr 212014
 
Where the Truth Lies, An Excerpt from <i>Chicken Soup for the Soul: Living With Alzheimer’s & Other Dementias</i>

The greatest enemy of any one of our truths may be the rest of our truths. ~William James My father doesn’t know that my sister, Alice, is dead. He doesn’t know that she had cancer, that she suffered, or that she, in a pain-pills-slur, asked to be buried in a red dress with no shoes. My father doesn’t know that I am his daughter, Elizabeth Emily, the girl he nicknamed “E.E.” for brevity and affection. He [...]

Apr 182014
 
Breaking Our Silence on Capitol Hill

When my husband Jim, who just turned 53, was first diagnosed with younger-onset Alzheimer’s disease, I wasn’t quite sure what was going on. The doctor didn’t tell us Alzheimer’s is fatal. He didn’t tell us there is no cure or that we should get our affairs in order. He didn’t tell us how long Jim might have left. He simply said, “See you back in six months.” If you are lucky, your doctor might refer [...]

Apr 072014
 
Advocacy: Why It Matters

I’m in Washington, D.C. today as an Alzheimer’s advocate. Why? Three years ago my life took a very unexpected change in course. In 2011 at the age of 56, I was diagnosed with younger-onset dementia, probable frontotemporal dementia (FTD). But my journey, although altered, is by no means over. I have chosen not to let this disease isolate or silence me. After my diagnosis I found it difficult to locate services and education for people [...]

Mar 112014
 
"You Don't Look Like You Have Alzheimer's"

A few weeks ago, I developed a cough. I went to the doctor, they checked everything out and sent me home. But I wasn’t getting better. I started to worry when the cough got really bad and I was having a hard time breathing. I called my son, who told me that if it didn’t get better, I should go to the emergency room. By three in the afternoon, I was still having trouble breathing, [...]

Feb 142014
 
Creating Awareness during Black History Month

During Black History Month, the Alzheimer’s Association spoke with Dr. Monica Parker, an African-American family physician, caregiver and assistant professor of medicine about her passion for providing communities with local resources. The theme throughout all of her research and work in the field is simple: Education. Board certified since 1990, Dr. Parker has practiced primary care and geriatric medicine in rural Georgia and urban Atlanta. Since 1995, she has been practicing with Emory Healthcare, often [...]

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