Aug 062010
 

Alzheimer’s champions in Congress are close to pushing the National Alzheimer’s Project Act (NAPA) through in the remaining months of this year, and now they need your help. They have the momentum, but they will only finish the job if their colleagues – your Senators and your Representatives – hear from you, your family and your friends. Some members of Congress have told us they haven’t heard from constituents about why the passage of NAPA [...]

May 202010
 

Readers, I wanted to share with you an update on the cost estimates of AD. These are, of course, in addition to the incalculable emotional losses caused by the disease, but are quite astonishing in themselves. The tremendous physical and emotional cost of the disease to Alzheimer’s sufferers and their families has been known for decades. There is also, however, a financial cost of the disease. Finally, in 1998 and again in 2002, reports were [...]

May 182010
 

We’ve always known that Alzheimer’s disease is expensive. It costs families precious time with their loved ones. It costs people their lives. But the costs to Medicare and Medicaid are also devastating. This morning, we released Changing the Trajectory of Alzheimer’s Disease and Other Dementias: A National Imperative. a report that examines how in the absence of disease-modifying treatments, the cumulative costs of care for people with Alzheimer’s and other dementias from 2010 to 2050 [...]

Apr 162010
 

Congress is now back at work on Capitol Hill after a few weeks in the district. We’ve heard stories from many advocates who met with their elected officials back home, and we know you are making a difference. We wanted to give you a brief update on where we are with the National Alzheimer’s Project Act (NAPA)(S. 3036/H.R. 4689). Thanks to the efforts of Alzheimer’s Association advocates, NAPA continues to gain momentum in Congress. In [...]

Mar 302010
 

What do Australia, South Korea and the Netherlands have in common? They are among the growing number of countries that have realized Alzheimer’s disease will overwhelm their healthcare systems if left unchecked – and they are all preparing to do something about it. Each of these countries is developing a national plan to fight the disease. So far, the United States has not; it’s time to change that. Three weeks ago, our congressional allies introduced [...]

Mar 082010
 

Last night’s Candlelight Tribute Rally was incredible – it was a beautiful night and a powerful way to remember why we’re all here and get invigorated for what lies ahead. We heard personal stories from advocates Leslie Walker and Steve Hume and then a call to action by David Hyde Pierce. He truly brought out the VOICE of the crowd. This morning we heard from veteran political strategist, author and educator Donna Brazile, who gave [...]

Mar 072010
 

Excitement started to build as advocates rolled into Washington, D.C. today for the Alzheimer’s Association Action Summit. Advocates have come from as far away as Alaska, others from nearby Maryland. They all have one thing in common: they’re all passionate about making a difference in the fight against Alzheimer’s. While working at registration today we heard story after story about the devastating affects of this disease. We have also heard amazing stories of hope and [...]

Jan 292010
 

This week President Obama delivered his first State of the Union to Congress, which highlighted the ongoing health care reform debate on Capitol Hill. As this debate carries on, the Alzheimer’s Association will continue to work tirelessly to ensure that, as Alzheimer’s advocates, your voice is heard in Washington. Now is not the time to rest, but to continue our commitment to passing reform that works for families affected by Alzheimer’s. Please take a moment [...]

Jan 072010
 

Each year, hundreds of Alzheimer advocates – people with the disease, caregivers, and family members – from across the nation come to Washington, DC to hone their advocacy skills and then share their perspectives, experiences, and recommendations in meetings with their elected representatives. A unique platform of information sharing and learning, the Alzheimer Action Summit truly represents the best of civic engagement in the American political process. We are pleased to announce our agenda for [...]

Dec 162009
 
Advocacy in India

Mike Splaine, Director of State Policy and Advocacy Programs, recently traveled to India to meet with the Alzheimer’s and Related Disorders Society of India. Mike shares some of his experiences about the trip below. It is hard to imagine meeting the challenge of Alzheimer’s disease in a developing country with limited infrastructure. Alzheimer’s and Related Disorders Society of India (ARDSI) is doing just that. I had the privilege of joining our colleagues from ARDSI as [...]

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