Sep 092016
 
We Must Walk

My mother Marilyn was diagnosed with Alzheimer’s in her late 60s, but I recognized that something was wrong in her mid-60s. She had been displaying signs of nervousness and was more forgetful than usual. She had always been a very outgoing and confident woman who dressed very fashionably. One day I noticed that her skirt hem was hanging and that she wasn’t taking the same care in her appearance. My mother succumbed to Alzheimer’s disease one year […]

Sep 062016
 
Why Everyone with Alzheimer’s Should Enroll in a Clinical Study

When you or a loved one receives an Alzheimer’s disease (AD) diagnosis and the equally bad news is that there isn’t a single medication on the market that can stop the mind-robbing disease in its tracks, it’s easy to feel hopeless. Who wouldn’t? But on the contrary, there is every reason to be hopeful. Why? More than 150 Alzheimer’s and related clinical trials in the U.S. are looking for volunteers. Each of these studies is […]

Sep 012016
 
Every Step Is a Step that Matters

I’ve been a proud team captain for the Walk to End Alzheimer’s for five years. I Walk for all those living with Alzheimer’s, including myself. I started having trouble with my memory in my 40s. I worked in a doctor’s office as a nurse and suddenly I forgot how to calculate inches to feet in height. Then, I couldn’t remember what shots were given at what age. Eventually, I forgot how to spell the doctor’s […]

Sep 012016
 
Waking Up to Sunshine

Family, fitness and faith are all at the center of my being. I was a caregiver for 13 years for two of the most important men in my life – my fathers. Like many caregivers, I experienced the joy and heartbreak of caring for my parents. It was a journey that sometimes made me laugh and sometimes made me cry. When my father was diagnosed with dementia after suffering from two strokes, I was concerned […]

Aug 232016
 
NIH Releases Second Alzheimer’s Professional Judgment Budget

This summer has been filled with positive advancements towards increased federal Alzheimer’s research funding in the House and the Senate for FY17. And, in August, Alzheimer’s champions received another reason to celebrate when the National Institutes of Health (NIH) recommended a $414 million increase in spending on Alzheimer’s disease research above NIH’s base appropriation for Fiscal Year 2018. Were this provided next year on top of what Congress is on track to provide this year, that […]

Aug 232016
 
Without Action, Alzheimer’s Will Overwhelm Federal Budget by 2050 – Part III

This is the final piece of a three part series on the need to act decisively to address the Alzheimer’s crisis. Part one reviewed the fiscal imperative to address the Alzheimer’s crisis, while part two addressed the research needs and opportunities. THE PEOPLE’S IMPERATIVE The public is increasingly aware of the need for action. A nationwide survey the Alzheimer’s Association fielded in 2015 found that voters view Alzheimer’s disease as a significant priority. The survey […]

Aug 222016
 
Without Action, Alzheimer’s Will Overwhelm Federal Budget by 2050 – Part II

This is part two of a three-part series on the need to act decisively to address the Alzheimer’s crisis. Part one reviewed the fiscal imperative to address the Alzheimer’s crisis, while part three reveals public opinion on the need for government to act. The Research Imperative The federal government has taken several important steps in recent years to address this looming crisis. The National Alzheimer’s Project Act (NAPA), passed unanimously by Congress in December 2010 and […]

Aug 192016
 
A Wedding Dance and a Walk

My mom has been living with younger-onset Alzheimer’s for over nine years, diagnosed when she was just 53. This is why I Walk to End Alzheimer’s. This year will be my fourth Walk in honor of her and the millions of people diagnosed with this disease. Some people mistakenly think that Alzheimer’s is a “cute” disease that happens to old people when they lose their memory. When I posted a video on Facebook last year […]

Aug 092016
 
Without Action, Alzheimer's Will Overwhelm Federal Budget by 2050 - Part I

This is part one of a three-part series on the need to act decisively to address the Alzheimer’s crisis. Part two addresses the research needs and opportunities. Part three reveals public opinion on the need for government to act. In the three seconds it takes you to read this sentence, taxpayers will have spent more than $15,000 on Alzheimer’s disease and other dementias. Within the hour, the cost will reach $18.3 million. Our nation’s entitlement programs […]

Jun 292016
 
A Passion for Compassion

Nikki Dodson is care partner for her husband Ken who has younger-onset Alzheimer’s disease. They are both 37 years old. We spoke to them about their reality of being a young family with a very unique story and a huge passion for ending Alzheimer’s. Nikki Ken received his Alzheimer’s diagnosis a week before his 30th birthday. Needless to say, it was a very difficult time. Even gaining access to some Alzheimer’s informative resources has been […]

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