Dec 222016
 
Finding Joy During My First Christmas with Alzheimer’s

The holidays have long been known as the season of joy, but how do you truly define joy? As someone living with Alzheimer’s disease and approaching my first Christmas since receiving the diagnosis, I’m beginning to define joy differently than I have in previous years. While I previously found joy during the holidays in festive decorations, music, meals and parties, I’ve come to realize these are fleeting. This year, spending time with my family, making […]

Dec 212016
 
Savoring Holiday Moments with Chef Madison Cowan

Alzheimer’s has touched Madison Cowan’s life more than once. Both his father and father-in-law passed away from complications of Alzheimer’s disease. Here he shares the importance of food, family memories and enjoying every moment this holiday season. My most prominent holiday memory is of my stepmum, who I consider my mum. I recall entering her home to the aroma of fresh-baked pastries wafting through the door. She had 10 children, and although her holiday party […]

Dec 132016
 
Celebrate the Season By Being True to Yourself

I was a college professor and nurse with my doctorate in education when I started having memory problems that were concerning me. Students had complained of inconsistent homework assignments, and my son Dan noticed that I was repeating myself in our phone conversations. Then one day while giving a speech in Washington D.C. about medical ethics, I totally blanked about where I was and why I was there – in the middle of my speech. […]

Nov 172016
 
Why I Walk: William’s Story

My experience with Alzheimer’s started in 2001. My grandfather (my father’s father) died of what was first described to me as senility. I was in my early 20s and thought nothing of it; people in their 80s just forgot things. It was not until 2009 or 2010 that I started to pay closer attention. We later discovered that my grandfather had had dementia. That’s when I also learned that my grandparents on my mother’s side […]

Nov 142016
 
Relief for Thousands Living with Alzheimer’s Disease

Today, there are an estimated 5.4 million Americans living with Alzheimer’s disease. And while most people associate the disease with old age, the fact is there are 200,000 Americans under the age of 65 living with it today. As with all forms of the disease, early-onset Alzheimer’s is a progressive, terminal disease, which cannot be prevented, cured or even slowed. Since the onset can occur in people as early as in their 30s and 40s […]

Nov 142016
 
Finding Joy in the Face of Alzheimer’s: Richard Lui Talks Family & Long-Distance Caregiving

We sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. Every week, Richard travels coast-to-coast to be with his family. Tell us about your father Steven’s Alzheimer’s diagnosis and how it came about. It began with a diagnosis of dementia. The interesting part is my Dad never had a great memory – it was something we joked about. However, what […]

Nov 102016
 
Walking for the First Survivor of Alzheimer’s

2016 marks the 5th year I have walked in Walk to End Alzheimer’s. This year, I was lucky to walk with friends and family, but there is one person I wish could walk with me – and I simultaneously realize that if she was here, I wouldn’t have the same compelling reason to walk. That person is my mom. When I was 15, my mom was diagnosed with early-onset Alzheimer’s at the age of 50. […]

Oct 212016
 
Remembering Mom: A Daughter’s Story

Our mother came from Portugal after marrying our father in 1958. She didn’t know anyone and didn’t speak the language. She followed the love of her life and they raised a beautiful family. They taught me the meaning of true love, loyalty and dedication to family and friends. Our father passed away in 2000, after 42 wonderful years of marriage. Although she had us kids and grandchildren as a distraction, she had a void that […]

Oct 212016
 
The Hardest Goodbye: A Granddaughter’s Story

I was 15 years old when I found out my grandmother was diagnosed with Alzheimer’s disease. I had heard of it. I knew about it from friends who had grandparents who suffered through it (and I’d seen The Notebook a million times), but nothing can ever prepare you for what comes after the diagnosis. I tried to convince myself over and over that she would suffer less because there would come a point that she […]

Oct 202016
 
Thank You for Loving Me

In 2015, I was diagnosed with younger-onset Alzheimer’s disease. My father, 85, and the youngest of 10, is living with Alzheimer’s, as well as one of his brothers. Their father also had the disease. Still fresh in my mind is an early incident at my grandparent’s home. My grandmother was trying to tell my grandfather where the closet was so that he could hang his coat, as he had done so many times before. He […]

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