May 012017
 
So Much Love: Jimmy Webb Tribute Concert in Honor of Glen Campbell

This Wednesday, May 3, a tribute concert will be performed at Carnegie Hall in honor of Grammy-winning songwriter, composer and singer Jimmy Webb. Art Garfunkel, Ashley Campbell, Toby Keith, Catherine Zeta-Jones, Marilyn McCoo and Dwight Yoakam are among the artists joining Jimmy onstage to benefit the Alzheimer’s Association and the I’ll Be Me Fund in honor of Jimmy’s friend of 50 years, Glen Campbell. We spoke to Jimmy about the event, his experience watching Glen’s […]

Apr 122017
 
FDA Approves At-Home Test for an Alzheimer’s Disease Risk Gene: What You Need to Know

Perhaps your grandmother had Alzheimer’s disease; maybe your mom or dad is currently living with the disease. You may be concerned that you are seeing signs of the disease in yourself or a loved one. Whatever the situation, if your family has been touched by Alzheimer’s, it is natural to be curious if a genetic test is valuable in predicting the likelihood of developing the disease. Although the cause of Alzheimer’s is still unknown, scientists […]

Apr 042017
 
Funny Face

“Mom has been very belligerent this morning,” Daddy told me on the phone. I was on the last leg of my journey to their apartment, having boarded the shared taxi from Tel Aviv to Netanya. “She’s been shouting and yelling. She pushed me out of the bathroom and swore at me and called me a ‘dirty old man.’ Then she refused my help getting dressed. I wanted you to know.” I was still about forty-five […]

Mar 152017
 
Amplify Your Advocacy Reach with New Social Media Tools

These days nearly every member of Congress is using Twitter, Facebook or Instagram on a regular basis. The era of congressional offices sending out press releases as the main way to convey the Member’s message is long gone. Now, both staff and members alike use social media to push information out immediately and interact with their constituents every single day. Because social media has become the main form of communication with most congressional offices, advocates […]

Feb 282017
 
Alzheimer’s Sucker-Punched Me

Like most college students, Alzheimer’s wasn’t something I thought about. In fact, I knew little about the disease – other than it robbed people of their memories. Then I happened to talk to a friend of mine who worked for the Alzheimer’s Association and I thought that interning with the organization could be a chance to offer my help while gaining some work experience. It felt invigorating and empowering to think of beginning a career […]

Feb 162017
 
Finding My Voice in the Fight to End Alzheimer’s: A Young Advocate’s Story

I am a hospice and palliative care nursing assistant for people living with Alzheimer’s disease. I have experienced countless moments of bathing and toileting people who have forgotten what toilet paper is, and countless minutes flipping through photo albums pointing out family members, picture by picture. Most importantly, I have countless special memories of holding someone’s hand as death washes over and a sort of freedom sets in. I have been someone’s doctor, someone’s granddaughter […]

Jan 132017
 
Rings on Her Fingers

My dad and I tried to take Mom’s rings off today, but we had no success. In addition to her wedding and engagement ring, Mom wears four other rings, each one tightly hugging her fingers, so much so that even with liberal amounts of lubrication, the rings do not come off. She’s been wearing them for so long that her fingers have shaped themselves around the rings. Mom has gained weight and her fingers are […]

Dec 222016
 
Finding Joy During My First Christmas with Alzheimer’s

The holidays have long been known as the season of joy, but how do you truly define joy? As someone living with Alzheimer’s disease and approaching my first Christmas since receiving the diagnosis, I’m beginning to define joy differently than I have in previous years. While I previously found joy during the holidays in festive decorations, music, meals and parties, I’ve come to realize these are fleeting. This year, spending time with my family, making […]

Dec 212016
 
Savoring Holiday Moments with Chef Madison Cowan

Alzheimer’s has touched Madison Cowan’s life more than once. Both his father and father-in-law passed away from complications of Alzheimer’s disease. Here he shares the importance of food, family memories and enjoying every moment this holiday season. My most prominent holiday memory is of my stepmum, who I consider my mum. I recall entering her home to the aroma of fresh-baked pastries wafting through the door. She had 10 children, and although her holiday party […]

Dec 132016
 
Celebrate the Season By Being True to Yourself

I was a college professor and nurse with my doctorate in education when I started having memory problems that were concerning me. Students had complained of inconsistent homework assignments, and my son Dan noticed that I was repeating myself in our phone conversations. Then one day while giving a speech in Washington D.C. about medical ethics, I totally blanked about where I was and why I was there – in the middle of my speech. […]

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